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- Relapsing remitted but am completely disabled because of a stroke in July 2022
Relapsing remitted but am completely disabled because of a stroke in July 2022
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Somya.P
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Somya.P
Community manager
Last activity on 19/11/2024 at 18:22
Joined in 2023
387 comments posted | 14 in the Living with multiple sclerosis group
38 of their responses were helpful to members
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Hello there, @ColinSalter,
How are you feeling today?
Thank you so much for sharing your story with us. It must be so incredibly difficult to manage both MS and the aftermath of the stroke, and I'm really sorry to hear about your disability. It's true that people with MS are more susceptible to a stroke. How have you been managing everything?
Here is a discussion that you might find helpful:
@Gffhhvcf @revdonahue @Ella93 @Kidkivcx @Mamakaj @terricawisner @luis.gonzalezblazquez @TomShillington @Nexabyqu @Jfnfnfnng @Elk217015 @Sdianew03 @jayane @Hfjfjfhjf @Chellechelle @kateheath @Kanaboyo @Sherryl @Mrspotter @flowergirl @Gggggggg @ehitschmann @Stevie123 @emilie+p-uk2 @Narcisse @waggywoo1 @waggy1 @Luke3341 @Iannoh @nazza91 @marie-gabrielle+p-uk1 @Caz1979 @billyjon @Priya1988 @NicolaS @JoLynn @Trish54 @Leicester-City-Fan @LindaMS @Franran3 @niamhobroin2021 @Byojaxs @alexab @AnneLH @charlotte+p-uk1 @Trumpmercy @Skiptry @ColinSalter @NaClearth @LIBBYSMUM10 @volvof88 @James-S @Debswallace @ahmedi @Gazza65 @murraygrant @Dorothyjeruto @Eab108 @JackieChristie @Jwales2 @karen5 @elmcroft25 @Theawr @rubyrose69 @Bryan123 @MrsBBumble @02920.teri @Nealson @Rachel5662 @KarenTravers @Rose1962 @Lee411 @Khallums12gmail.com @lucy2000t2000 @Drclayyon @Jackline @Lizgee @Lenny62 @Georgewash @Winniebruce @funkychicken2021 @Levimurfitt @almasi @jonahchap @marcussam @hillajeff52 @beri082 @Nikjay @CallumFlowers @korisk76 @jeromesam12 @Lindseypharoah @TracyF15 @TracyD15 @JessicaAli @wendy269 @Carragher11 @Trainor84 @Chuichupo
If anyone here has had similar experiences or has found ways to cope with both MS and the disabilities that can come after a stroke, please feel free to share your insights.
Your experience could really help others who might be going through something similar.
Take care,
Somya from the Carenity team 🌼
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Somya
ColinSalter
ColinSalter
Last activity on 13/11/2024 at 07:38
Joined in 2021
6 comments posted | 4 in the Living with multiple sclerosis group
3 of their responses were helpful to members
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My first Multiple Sclerosis attack was in 1992 when I lost my sight in my left eye it came back after treatment at hospital but Multiple Sclerosis was not diagagnosed
In the early 2000 I started to suffer from fatigue I fell asleep during section meetings had a accident in company van when I fell asleep while driving I woke up just before I hit the car in front I stopped in company van and had a sleep for 1/2 hour
Had another accident in company van in 2011 again I woke up just before I hit the car in front did not get into trouble for it because of 100000 miles between accidents
In February 2012 I attended my doctor's because my legs were dead he sent me to a hospital where they diagnosed Multiple Sclerosis
Thank you Colin Salter
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cwright17
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cwright17
Last activity on 18/11/2024 at 15:35
Joined in 2021
35 comments posted | 27 in the Living with multiple sclerosis group
6 of their responses were helpful to members
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@ColinSalter it's a shame it took that long to get diagnosed 😢 did they not do an MRI when you temporarily lost your vision in your left eye? Only saying "temporarily" because I don't think you would have been allowed to drive otherwise 🤔😔
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Charlotte Hargreaves-Wright (he's also double barrelled his name so he can be "Wright" half the time)
ColinSalter
ColinSalter
Last activity on 13/11/2024 at 07:38
Joined in 2021
6 comments posted | 4 in the Living with multiple sclerosis group
3 of their responses were helpful to members
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@cwright17 driving was not mentioned I continued to drive company van so still did my job I had 6/6 vision so perfect in my right eye
Thank you Colin Salter
cwright17
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cwright17
Last activity on 18/11/2024 at 15:35
Joined in 2021
35 comments posted | 27 in the Living with multiple sclerosis group
6 of their responses were helpful to members
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@ColinSalter that's brilliant, with you still being able to drive (apart from maybe needing regular naps) with your good R eye
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Charlotte Hargreaves-Wright (he's also double barrelled his name so he can be "Wright" half the time)
ColinSalter
ColinSalter
Last activity on 13/11/2024 at 07:38
Joined in 2021
6 comments posted | 4 in the Living with multiple sclerosis group
3 of their responses were helpful to members
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@cwright17 It also allowed me to continue with my hobby motorcycle road racing at the end of August I was off to the isle man my eye sight was 6/6 in both eyes
Which I continued to do until 2004 in February 2005 I fell off while testing in Spain so spent a few days in a Spanish hospital with broken ribs so decided to retire
The fatigue continued to get worse because I used to do a lot touring on my motorbike and did long distance trails on my trial bike
In 2007 I did with my mate I went racing with went to South Africa where we bought some trail bikes used them to travel from Port Elizabeth to Durban following dirt roads and river crossings when we finished with the bikes they were given to riders for health for use in Zimbabwe
So I managed a lot fun before diagnosis
Thank you Colin Salter
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ColinSalter
ColinSalter
Last activity on 13/11/2024 at 07:38
Joined in 2021
6 comments posted | 4 in the Living with multiple sclerosis group
3 of their responses were helpful to members
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I have relapsing remitting Multiple Sclerosis but am completely disabled after a stroke in 2022