Progressive MS and the Coronavirus - Should we be shielding?

301 views
19 times supported
18 comments

Kimskin

08/04/2020 at 15:55

Kimskin

Last activity on 11/04/2020 at 19:21

Joined in 2020

1 comment posted | 1 in the Living with multiple sclerosis group

Rewards

Explorer

View profileView Add a friendAdd Write

Hello I have only just got diagnosed after having symptoms for last 5 years. If you have Progressive MS but are not yet on any treatment are you on the shielding list. Thank you

All comments

Go to the last comment

Courtney_J

Community manager

14/04/2020 at 14:52

Good advisor

Courtney_J

Community manager

Last activity on 13/10/2022 at 16:47

Joined in 2020

1,280 comments posted | 58 in the Living with multiple sclerosis group

10 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Messenger
Committed
Explorer
Evaluator

View profileView Add a friendAdd Write

@Kimskin‍ Hello Kimskin, thank you for starting this discussion, I think many MS patients are wondering about this. Let me tag some member to get their perspectives.

Hello members, I hope you're doing well despite these trying circumstances. Are you all shielding? Have you had any information from your GP or the NHS? Do you have any advice for Kimskin?

@Jemgavlaa‍ @thembrough‍ @EmilieH‍ @Kareema‍ @Claire1974‍ @Cherylmoore‍ @vonnywonkie‍ @Granmarshall‍ @Barbershop19‍ @NicLiv‍ @ANGIE.‍ @Jowilliamson82‍ @MSWarrior123‍ @Bonnyvonny64‍ @Amy1977‍ @JuWall76‍

Take care,

Courtney

See the signature

Courtney_J, Community Manager, Carenity UK

Progressive MS and the Coronavirus - Should we be shielding? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/coronavirus-3175 2020-04-14 14:52:34

Jemgavlaa

14/04/2020 at 14:57

Jemgavlaa

Last activity on 10/11/2024 at 15:50

Joined in 2020

1 comment posted | 1 in the Living with multiple sclerosis group

Rewards

Explorer

View profileView Add a friendAdd Write

Hi, I work in a care home and my manager has asked me to not go in to work until further notice. I have rrms possibly secondary now but my GP has said I'm not technically sick so unable to get a sick note and to stick to self distancing rules which is the category I fall in to or to change my job role to make distancing possible. It still isnt possible. I havent recieved a letter telling me to isolate for 12 weeks as I have no problems breathing etc so not expecting to receive one.

Progressive MS and the Coronavirus - Should we be shielding? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/coronavirus-3175 2020-04-14 14:57:46

vonnywonkie

14/04/2020 at 15:26

vonnywonkie

Last activity on 14/10/2024 at 19:16

Joined in 2020

1 comment posted | 1 in the Living with multiple sclerosis group

Rewards

Explorer

View profileView Add a friendAdd Write

@Courtney_J Hiya Courtney, yes I'm shielding as I have rheumatoid arthritis, had my letter through so home for 12 weeks.

The sun has come out which makes it easier to relax in the garden in the sun.

My employer has also made provisions so I can work from home. My dad however had MS as is being made to go into work so I'm more worried for him.

Thanks von

Progressive MS and the Coronavirus - Should we be shielding? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/coronavirus-3175 2020-04-14 15:26:32

MSWarrior123

14/04/2020 at 17:53

Good advisor

MSWarrior123

Last activity on 12/11/2024 at 19:17

Joined in 2020

10 comments posted | 9 in the Living with multiple sclerosis group

Rewards

Good Advisor
Contributor
Committed
Explorer
Evaluator
Friend

View profileView Add a friendAdd Write

@Kimskin‍ Hi. Im isolating, but not fully shielding as im on tysabri so classed as vulnerable, not highly vulnerable... according to some....But im not going out unless I really have to. I also havent had anything from the gp, nhs or gov... but my gp has said to go back to them in a couple of weeks if still heard nothing! X

Progressive MS and the Coronavirus - Should we be shielding? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/coronavirus-3175 2020-04-14 17:53:23

clarebear030574

18/04/2020 at 17:04

Good advisor

clarebear030574

Last activity on 11/05/2020 at 18:46

Joined in 2020

2 comments posted | 2 in the Living with multiple sclerosis group

Rewards

Good Advisor
Explorer

View profileView Add a friendAdd Write

Hi, I can understand not being shielded as there are lots of people with MS in varying stages, but after watching the news and hearing that MS patients were classed as vunerable, I was actually waiting for a letter from my GP / NHS. I have SPMS after being diagnosed in 1998 and like many I have mobility issues, chronic fatigue, pain, cognative problems to name but a few, and as such I always order my groceries online. I can't anymore though because of the fit and healthy ordering. So now i have no choice but to go out on my mobility scooter and to struggle going around the supermarket on my scooter with a basket between my feet on the footplate, struggling to reach into freezers. reaching above 3rd shelf is impossible and causing a huge queue at the checkout because my clumsy hands make packing bags slow......sorry all, rant over ( for now) xx

Progressive MS and the Coronavirus - Should we be shielding? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/coronavirus-3175 2020-04-18 17:04:03

weefeemcdee

20/04/2020 at 13:41

Good advisor

weefeemcdee

Last activity on 27/06/2021 at 06:12

Joined in 2016

17 comments posted | 5 in the Living with multiple sclerosis group

1 of their responses was helpful to members

Rewards

Good Advisor
Contributor
Committed
Explorer
Evaluator

View profileView Add a friendAdd Write

I have been keeping myself busy - doing my accounts & tax return. I am self employed as a reflexologist & footcare practitioner so am unable to see clients. So I have been phoning clients to cancel appointments & for a blether (chat) as they too are finding they are not getting the same amount of conversation with not being able to see friends & family.

Other things I am enjoying doing while not being allowed to work -

- spending more time with my rabbits (a bit of pet therapy)

- back into learning to play an instrument (oboe)

- baking

See the signature

Fi x

Progressive MS and the Coronavirus - Should we be shielding? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/coronavirus-3175 2020-04-20 13:41:46

ladymary

20/04/2020 at 15:23

Good advisor

ladymary

Last activity on 07/08/2023 at 21:39

Joined in 2017

36 comments posted | 27 in the Living with multiple sclerosis group

Rewards

Good Advisor
Contributor
Messenger
Explorer

View profileView Add a friendAdd Write

Hello all, I really should log in more often, it's wonderful to see so many old and new faces here! I've also been trying to keep busy. I was a bit frustrated as I started water aerobics last autumn to try to keep moving and I'd really been enjoying it since the instructor was understanding of my condition and I could go at my own pace. Now that's been shut down clearly and I've been trying to follow exercise videos on the internet. You all have inspired me, maybe I'll crack open that piano that's been collecting dust in the corner of the sitting room! Take care and stay safe everyone!

Progressive MS and the Coronavirus - Should we be shielding? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/coronavirus-3175 2020-04-20 15:23:58

Garyrobert

27/04/2020 at 12:51

Garyrobert

Last activity on 21/08/2024 at 18:28

Joined in 2020

9 comments posted | 3 in the Living with multiple sclerosis group

1 of their responses was helpful to members

Rewards

Committed
Explorer
Friend

View profileView Add a friendAdd Write

Hi I’m gary and this is my first post I have PPMS and have been working until 3 weeks ago in a nursing home I became unwell and a week ago I had to go to hospital and yes I have the virus 🦠 it knocks me off my feet and made me very ill 🤧 so I thank if you can self isolate would be very sensible I hope this might help keep safe

Progressive MS and the Coronavirus - Should we be shielding? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/coronavirus-3175 2020-04-27 12:51:48

Anita7263

27/04/2020 at 17:32

Anita7263

Last activity on 10/08/2024 at 23:24

Joined in 2020

2 comments posted | 1 in the Living with multiple sclerosis group

Rewards

Explorer

View profileView Add a friendAdd Write

Hope you manage to recover okay Gary.

Progressive MS and the Coronavirus - Should we be shielding? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/coronavirus-3175 2020-04-27 17:32:54

Courtney_J

Community manager

27/04/2020 at 17:57

Good advisor

Courtney_J

Community manager

Last activity on 13/10/2022 at 16:47

Joined in 2020

1,280 comments posted | 58 in the Living with multiple sclerosis group

10 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Messenger
Committed
Explorer
Evaluator

View profileView Add a friendAdd Write

@Garyrobert Hello Garyrobert, thank you for sharing your experience with us! I'm so sorry you're going through that, it must be so frightening! How are you feeling?

See the signature

Courtney_J, Community Manager, Carenity UK

Progressive MS and the Coronavirus - Should we be shielding? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/coronavirus-3175 2020-04-27 17:57:02

Progressive MS and the Coronavirus - Should we be shielding?

All comments

Give your opinion

What do you think about the Carenity Forum and community?

What are your expectations from Carenity and what would you like to see in the future?

Articles to discover...