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- If you could get rid of one of your symptoms, which one would it be and why?
If you could get rid of one of your symptoms, which one would it be and why?
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Nicolamp
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Nicolamp
Last activity on 13/11/2024 at 16:53
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7 comments posted | 1 in the Good to know group
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I’d dearly love to be able to move freely without falling. I dream of how I used to skip down flights of stairs when I was in my late teens, early 20’s.
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Nicola
jonscfc
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jonscfc
Last activity on 02/10/2024 at 18:21
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My degenerative disc disorder where all the discs in my spine have collasped. Since having MG the pain is excruciating and now have to use a wheelchair to go any distance. Ive got say followed so close by my depression and anxiety which im suffering badly with and dont know how much longer i can carry on.
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jon
Silverlady
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Silverlady
Last activity on 19/11/2024 at 19:14
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@Moonstone1
Hello ,do you use anything on your skin for the itching ,if you can try Cetraben d this is good for the skin , also maybe drink a lot of water to help hydrate your skin , just a little suggestion to let you know people care , it must be so frustrating , give it a try and good luck with it x
KPangela
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KPangela
Last activity on 20/11/2024 at 14:32
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For me it has to be methotrexate. I suppose the drug works but, if you are on off it because you are taking any antibiotics, it really messes with your hippocampus, the part of the brain extremely important for short term memory. It messes with it anyway when I'm on the dose, but when you're on the same dose weekly i-90 how to handle it how to deal with it. Stop starting it is the worst, I feel myself repeating things, keep asking to repeat what another has said, pardon what did you say, I didn't hear that, and it just sounds I'm a dummy. The worst has to be losing track of conversations all the time
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Karen
Moonstone1
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Moonstone1
Last activity on 15/09/2024 at 16:16
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@KPangela Yes i use Aveeno moisturiser and Cerevee cream it helps for a while but the itching only stops when i go to sleep again ! Not always easy as the itching is so bad it often keeps me awake until the early hours when i fall into an exhausted sleep for an hour or two.
Tigger.co.uk
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Tigger.co.uk
Last activity on 21/11/2024 at 23:00
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Had my fourth injection last Saturday, my arm ached for 2 days but felt ok after also they have changed my inhalers instead of triopium and seretide I now have a trim bow finding it much more helpful with my cough not coughing quite so much but still getting my headaches and feeling very tired plus still have my bruises on my knees from my fall in pound stretchers so when I go out I use my tubing grip to help with the pain Tigger
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D M A
Silverlady
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Silverlady
Last activity on 19/11/2024 at 19:14
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@Tigger.co.uk
Hi Tigger
I had my booster last week but as with the 1st I had a really bad head the next day .Bless hope you are ok from your fall that jolts the body and upsets your system , take care next time ,
Happy Easter 😊
Tigger.co.uk
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Tigger.co.uk
Last activity on 21/11/2024 at 23:00
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Thank you silverlady still have the bruises but I am getting better with my headache ,my arm felt very heavy for a couple of days hope you are ok take care stay safe Tigger
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D M A
Tigger.co.uk
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Tigger.co.uk
Last activity on 21/11/2024 at 23:00
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This weekend I had my family come and stay,I was very upset because I never walked very far but felt worried of falling my legs really ached was very tired so I didnt do what I wanted to do still feeling very.very tired but I am trying to get myself moving as I hate feeling this way as it makes my PTSD depression worse ,but I am going to try and go out with my rolator again I am not going to let this get the better of me as I think it upset my family to see me this way I do hope you all ok and stay safe love Tigger xx
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BAZWHEAT
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BAZWHEAT
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Broken rib, very painful, not so mobile !
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bazwheat
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JosephineO
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JosephineO
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Hello everyone,
With chronic illness comes difficult symptoms. We thought we would start a discussion today asking you, if you could get rid of one of your symptoms, which one it be and why?
Tell us in the comments below :)