Have you had any reactions from steroids used to treat MS?

72 views
1 support
4 comments

Dina83

06/06/2019 at 21:22

Dina83

Last activity on 14/08/2024 at 00:04

Joined in 2017

3 comments posted | 3 in the Treatments for multiple sclerosis group

Rewards

Committed
Explorer

View profileView Add a friendAdd Write

I've recently had my 3rd relapse since being diagnosed in 2012. I have had the 5 day high dose course of steroids before and I am used to the unpleasant side effects - constant nausea and everything tasting of metal followed by the insatiable appetite once my taste comes back. However, this time I finished the course over a week ago and spent the next few days having what I can only describe as withdrawal symptoms - sweating and shivering at the same time, hallucinating and the most horrific stomach cramps and skin hurt to touch almost like it felt sunburnt! I'm starting to feel better now but one of the symptoms that won't go away is really itchy palms, neck and head!!it's really starting to get me down as I'm scratching myself raw. I just wanted to know if anyone else has experienced anything similar and what they did to suppress the itch or how long I can expect it to last???going a bit crazy here 😫

All comments

Pleasance

19/06/2019 at 14:52

Good advisor

Pleasance

Last activity on 16/05/2023 at 11:23

Joined in 2014

63 comments posted | 29 in the Treatments for multiple sclerosis group

Rewards

Good Advisor
Contributor
Explorer
Evaluator
Friend

View profileView Add a friendAdd Write

@Dina83 Hello,

That sounds truly awful :( my heart goes out to you. I experienced some itching but nothing to the extent that you describe. Perhaps a trip the the dermatologist is in order? what did your doctor say?

See the signature

Pleasance

Have you had any reactions from steroids used to treat MS? https://www.carenity.co.uk/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/steroids-side-effects-2849 2019-06-19 14:52:56

Dina83

20/06/2019 at 09:41

Dina83

Last activity on 14/08/2024 at 00:04

Joined in 2017

3 comments posted | 3 in the Treatments for multiple sclerosis group

Rewards

Committed
Explorer

View profileView Add a friendAdd Write

The itching had subsided thankfully I'm still not 100% though my vision is still weird when I look to the left! Going back to clinic tomorrow I have to see an opthalmologist and then maybe they'll change my medication who knows with this disease??just wish it wasn't so unpredictable 😔

See the signature

Christina 🤷

Ianleanne

20/06/2019 at 10:39

Ianleanne

Last activity on 15/09/2021 at 21:12

Joined in 2014

1 comment posted | 1 in the Treatments for multiple sclerosis group

Rewards

Explorer

View profileView Add a friendAdd Write

Increased appetite, whole body vibrations. Metallic taste and loss of taste. I’ve on average had the 5 day course around once a year. 4 of my teeth have suddenly broken, I’m wondering if this is down to steroid use?

Dina83

20/06/2019 at 17:42

Dina83

Last activity on 14/08/2024 at 00:04

Joined in 2017

3 comments posted | 3 in the Treatments for multiple sclerosis group

Rewards

Committed
Explorer

View profileView Add a friendAdd Write

Once a year? That sounds horrendous what if anything have they done to your medication? I'm only on copaxone at the moment thinking that may change after my visit 2 clinic tomorrow. I wouldn't know if steroids would cause your broken teeth but I can only imagine having such a high dose as often as you have can't be good for your body. What do your nurses/neurologists say?

See the signature

Christina 🤷

Courtney_J

Community manager

22/09/2021 at 14:45

Good advisor

Courtney_J

Community manager

Last activity on 13/10/2022 at 16:47

Joined in 2020

1,280 comments posted | 58 in the Treatments for multiple sclerosis group

10 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Messenger
Committed
Explorer
Evaluator

View profileView Add a friendAdd Write

Hello everyone,

How are you today? Have you seen this older discussion? emoticon cute

Have any of you have any reactions to corticosteroids prescribed to treat your MS? When did it happen - when you first started them or when you had been taking them for a while? What type of reactions did you have? How did you cope with it?
@Iannoh‍ @nazza91‍ @Caz1979‍ @Rach115‍ @NicolaS‍ @Priya1988‍ @NicolaS‍ @JoLynn‍ @Leicester-City-Fan‍ @niamhobroin2021‍ @Franran3‍ @Byojaxs‍ @alexab‍ @AnneLH‍ @Trumpmercy‍ @NaClearth‍ @LIBBYSMUM10‍ @volvof88‍

Feel free to share with us here, sharing

Take care,
Courtney

See the signature

Courtney_J, Community Manager, Carenity UK

Have you had any reactions from steroids used to treat MS?

All comments

Give your opinion

What do you think about the Carenity Forum and community?

Articles to discover...