- Home
- Share
- Forum
- Multiple sclerosis Forum
- Treatments for multiple sclerosis
- Have you had any reactions from steroids used to treat MS?
Patients Multiple sclerosis
Have you had any reactions from steroids used to treat MS?
- 72 views
- 1 support
- 4 comments
All comments
Pleasance
Good advisor
Pleasance
Last activity on 16/05/2023 at 11:23
Joined in 2014
63 comments posted | 29 in the Multiple sclerosis Forum
Rewards
-
Good Advisor
-
Contributor
-
Explorer
-
Evaluator
-
Friend
@Dina83 Hello,
That sounds truly awful :( my heart goes out to you. I experienced some itching but nothing to the extent that you describe. Perhaps a trip the the dermatologist is in order? what did your doctor say?
See the signature
Pleasance
Dina83
Dina83
Last activity on 14/08/2024 at 00:04
Joined in 2017
3 comments posted | 3 in the Multiple sclerosis Forum
Rewards
-
Committed
-
Explorer
The itching had subsided thankfully I'm still not 100% though my vision is still weird when I look to the left! Going back to clinic tomorrow I have to see an opthalmologist and then maybe they'll change my medication who knows with this disease??just wish it wasn't so unpredictable 😔
See the signature
Christina 🤷
Ianleanne
Ianleanne
Last activity on 15/09/2021 at 21:12
Joined in 2014
1 comment posted | 1 in the Multiple sclerosis Forum
Rewards
-
Explorer
Increased appetite, whole body vibrations. Metallic taste and loss of taste. I’ve on average had the 5 day course around once a year. 4 of my teeth have suddenly broken, I’m wondering if this is down to steroid use?
Dina83
Dina83
Last activity on 14/08/2024 at 00:04
Joined in 2017
3 comments posted | 3 in the Multiple sclerosis Forum
Rewards
-
Committed
-
Explorer
Once a year? That sounds horrendous what if anything have they done to your medication? I'm only on copaxone at the moment thinking that may change after my visit 2 clinic tomorrow. I wouldn't know if steroids would cause your broken teeth but I can only imagine having such a high dose as often as you have can't be good for your body. What do your nurses/neurologists say?
See the signature
Christina 🤷
Courtney_J
Community managerGood advisor
Courtney_J
Community manager
Last activity on 13/10/2022 at 16:47
Joined in 2020
1,280 comments posted | 58 in the Multiple sclerosis Forum
10 of their responses were helpful to members
Rewards
-
Good Advisor
-
Contributor
-
Messenger
-
Committed
-
Explorer
-
Evaluator
Hello everyone,
How are you today? Have you seen this older discussion?
Have any of you have any reactions to corticosteroids prescribed to treat your MS? When did it happen - when you first started them or when you had been taking them for a while? What type of reactions did you have? How did you cope with it?
@Iannoh @nazza91 @Caz1979 @Rach115 @NicolaS @Priya1988 @NicolaS @JoLynn @Leicester-City-Fan @niamhobroin2021 @Franran3 @Byojaxs @alexab @AnneLH @Trumpmercy @NaClearth @LIBBYSMUM10 @volvof88
Feel free to share with us here, sharing
Take care,
Courtney
See the signature
Courtney_J, Community Manager, Carenity UK
Give your opinion
Members are also commenting on...
Articles to discover...
04/10/2024 | Advice
Multiple sclerosis (MS) and sexual dysfunction: everything there is to know!
30/05/2024 | News
What are the benefits of herbal medicine for multiple sclerosis?
24/04/2024 | Testimonial
Multiple Sclerosis: “I am a warrior, and I will overcome this illness with love and positivity.”
19/05/2017 | Testimonial
23/03/2018 | News
13/06/2016 | News
02/10/2018 | Advice
Medication fact sheets - patient opinions...
Subscribe
You wish to be notified of new comments
Your subscription has been taken into account
Dina83
Dina83
Last activity on 14/08/2024 at 00:04
Joined in 2017
3 comments posted | 3 in the Multiple sclerosis Forum
Rewards
Committed
Explorer
I've recently had my 3rd relapse since being diagnosed in 2012. I have had the 5 day high dose course of steroids before and I am used to the unpleasant side effects - constant nausea and everything tasting of metal followed by the insatiable appetite once my taste comes back. However, this time I finished the course over a week ago and spent the next few days having what I can only describe as withdrawal symptoms - sweating and shivering at the same time, hallucinating and the most horrific stomach cramps and skin hurt to touch almost like it felt sunburnt! I'm starting to feel better now but one of the symptoms that won't go away is really itchy palms, neck and head!!it's really starting to get me down as I'm scratching myself raw. I just wanted to know if anyone else has experienced anything similar and what they did to suppress the itch or how long I can expect it to last???going a bit crazy here 😫