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Can lupus cause hair loss? How to cope?

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ClaireTF

Edited on 28/11/2016 at 20:07

ClaireTF

Last activity on 02/06/2020 at 18:18

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Hi, has anybody with experienced hair loss? I lost a lot at one point and I continue losing some of it every time I brush my haire.

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KPangela

28/11/2016 at 20:07

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having lived with lupus for over 30 years I have always had hair loss for me it's just one of those things. I have to deal with. I found if I brush my hair carefully and don't pull and tug it too much. when when I wash it wash it carefully with mild shampoos you don't lose quite as much. if you put your hair up don't put the band on too tight around your hair so then when you pull it out half a hair doesn't come out with band.

It's all practical ways of keeping my hair on my head a good tip is when you go to bed put a hair band in as well then you don't end up with loads of hair on your pillowcase.

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Karen

Can lupus cause hair loss? How to cope? https://www.carenity.co.uk/forum/lupus/living-with-lupus/hair-loss-1462 2016-11-28 20:07:36

lupus79

31/03/2022 at 09:22

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I've noticed this too. Even my eyelashes and eyebrows have started to thin out. I don't really touch my hair anymore because I'm afraid it will come out. I used baby shampoo too because I heard it's more gentle.

Can lupus cause hair loss? How to cope? https://www.carenity.co.uk/forum/lupus/living-with-lupus/hair-loss-1462 2022-03-31 09:22:58

Courtney_J

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31/03/2022 at 11:06

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Courtney_J

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Hello all, thank you for commenting! 😊

Has anyone else experienced hair thinning or hair loss? Was it caused by your treatments or your lupus itself, do you think? How do you cope with it? Is there anything that helps?

@Smelly @Baileytaramac @MrsB007 @Sandykg @CeriPrice @BeverleyAnnemcc @Debrahenden @Aideenof @Susannah16 @Jackleo1 @Marc18 @Julilonpe @Raine29 @Sofy786 @lupusk @Kazz76 @Divinidad @paddy1 @Ruthgoddard

Take care,

Courtney

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Courtney_J, Community Manager, Carenity UK

Can lupus cause hair loss? How to cope? https://www.carenity.co.uk/forum/lupus/living-with-lupus/hair-loss-1462 2022-03-31 11:06:12

brillnor

31/03/2022 at 18:24

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Lupus does cause some hair loss which is made worse by some of the treatment. You can get assistance with wig purchase and some hair mousse also help.

Can lupus cause hair loss? How to cope? https://www.carenity.co.uk/forum/lupus/living-with-lupus/hair-loss-1462 2022-03-31 18:24:18

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21/11/2016 at 15:19

I had a hip replacement 16 months ago due to osteoarthritis. I can honestly say it was the best decision I have ever made. Yes I was not looking forward to everything post op, but I am now 100% mobile and after not being able to walk any distances I now enjoy walking again and I've managed to lose 2.5 stones. Totally pain free and I've had lots of comments about how much happier I look - my face was obviously showing my pain. If you have any questions please ask!

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21/11/2016 at 15:19

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Can lupus cause hair loss? How to cope?

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