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Gaining control of Lupus and life.
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eleventwelve
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eleventwelve
Last activity on 07/05/2020 at 09:28
Joined in 2016
9 comments posted | 9 in the Lupus Forum
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@Smelly I really understand how you're feeling. I always say my lupus is like a crazy stranger I'm forced to feed and lodge. Periods of quiet and then boom, it pops up somewhere else. Have you been better lately?
iwillbeatthis
iwillbeatthis
Last activity on 02/08/2023 at 11:03
Joined in 2020
6 comments posted | 6 in the Lupus Forum
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@eleventwelve You describe it perfectly! If only I could put my lupus up for eviction!
upnorthhere
upnorthhere
Last activity on 19/06/2020 at 15:22
Joined in 2020
@Smelly My goodness, you've really been through it all! Fortunately (or not really as it's no picnic), lupus is my main illness. I agree, I wish the treatments were better. I think there's a lack of knowledge and maybe of research on it. Hopefully that will change with time. Wishing you well! x
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Living with diseases affecting muscles, joints and-or skeleton
Life after a joint replacement: Share your experiences and advice!
Unregistered member
I had a hip replacement 16 months ago due to osteoarthritis. I can honestly say it was the best decision I have ever made. Yes I was not looking forward to everything post op, but I am now 100% mobile and after not being able to walk any distances I now enjoy walking again and I've managed to lose 2.5 stones. Totally pain free and I've had lots of comments about how much happier I look - my face was obviously showing my pain. If you have any questions please ask!
See the best comment
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Smelly
Smelly
Last activity on 26/02/2022 at 09:52
Joined in 2019
1 comment posted | 1 in the Lupus Forum
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After living with Lupus for 30 years I can honestly say that it never ceases to surprise me. My SLE is random and attacks different areas of my body, you never know what's coming next. I've lost my big toe owing to malignant melanoma, a beautiful baby who was a twin and the surviving twin is now 12 years old. I've had 5 bowel resections, the bottom lobe of my right lung removed owing to non small cell carcinoma, thrombo phlebitis, the lenses in my eyes replaced, 5 stomach ulcers,.... I could go on but what's the point. My life is controlled by my crazy immune system. My family ate amazing but i know I'm a burden, i just wish the medication was more effective.