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What is the most frustrating or difficult aspect of living with fibromyalgia?

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What is the most frustrating or difficult aspect of living with fibromyalgia?

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Edited on 19/02/2016 at 19:28

Hello everyone,

Fibromyalgia is a very individual disease and affects everyone differently. What is the hardest part to deal with in your daily life? The pain, the fibro-fog, not being able to work or do the gardening or maybe that people don't understand what you are going through?

Share your experiences and struggles here.

All the best

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FibroClaire

17/06/2021 at 11:40

FibroClaire

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11 comments posted | 11 in the Fibromyalgia Forum

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@Tiger1924‍ I completely understand, I was made to feel the same way. The doctors always seem to think we're exaggerating or making it up. It's a major reason why my diagnosis took so long. They refused to consider that it was fibro and kept telling me it was just arthritis. Keep pushing through, it's all we can do really. 😢

What is the most frustrating or difficult aspect of living with fibromyalgia? https://www.carenity.co.uk/forum/fibromyalgia/living-with-fibromyalgia/the-hardest-part-of-dealing-with-fibro-80 2021-06-17 11:40:59

Pippadog

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09/03/2023 at 15:38

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I find Fibromyalgia very confusing at times because the effects of the pain anywhere around the body which can be misleading to the individual ie chest it rib pains can make one feel they could be having an angina/ heart attack or having pain in the calf muscle can make one feel they are developing a DVT. I try to reassure myself that it isn't because of the length of time the pain lasts.

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