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How often do you have a seizure on average?

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JosephineO

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02/07/2019 at 16:31

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JosephineO

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Last activity on 15/07/2024 at 09:21

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Hello everyone,

Seizures can vary in frequency among those with epilepsy, from one a year to several a day.

How many seizures do you have a day? a month? a year?

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JosephineO

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02/07/2019 at 16:50

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JosephineO

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Last activity on 15/07/2024 at 09:21

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How about you? When was your last seizure? What has been your longest lapse of time between two seizures? Please share :)

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Josephine, Community Manager

How often do you have a seizure on average? https://www.carenity.co.uk/forum/epilepsy/symptoms-and-complications-of-epilepsy/how-often-do-you-have-a-seizure-on-average-2883 2019-07-02 16:50:01

lesmal

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Edited on 09/07/2019 at 13:03

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lesmal

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Last activity on 02/12/2024 at 18:10

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Thank you for bringing up this topic... It should be interesting to see others' replies.

I have had epilepsy for 45 years now which initially started as 'grand mal' seizures. The wording for this has now changed to 'tonic clonic' seizures. As a teenager and during initial diagnosis, these were frequent, approximately 3 per week, together with frequent partial seizures. Due to stress of exams and hormonal changes, these got more often. One is given medication, but this may not always work and takes time to get into one's system. Finding the correct medication took years, and of course finding the correct dosage was even harder.

Once stable and after a full hysterectomy, the frequency of my seizures stabilised to approximately 2 per month. As I got older and went into Menopause, I had approximately one massive seizure a month. The simple partial seizures never stopped. Heat, hormonal changes and stress were the three main triggers for me.

I re-located to a cooler climate on the other side of the world, and since arrival here (almost 2 years), have had only one tonic clonic seizure. I put this down to cooler weather, less stress and a more relaxed lifestyle. However, the simple partials still continue.

After recent testing new medication has now been prescribed after 30 years on one medication, so trying to get used to the change has been harder even still. I am currently on a 12 week weaning off one and increasing another medication process. Since starting the medication and whilst increasing the dosage, I've had more partial seizures in 6 weeks, but I put this down to the change. I will continue to persevere for the 12 weeks and once consulting with the Neurologist, will make a decision from there.

In all 45 years with epilepsy, the last 2 years has been the longest I've gone without a tonic clonic seizure! These appear to be well controlled now; controlling the minor ones is the difficulty.

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Les

How often do you have a seizure on average? https://www.carenity.co.uk/forum/epilepsy/symptoms-and-complications-of-epilepsy/how-often-do-you-have-a-seizure-on-average-2883 2019-07-09 13:00:04

Sazzy1969

06/08/2019 at 21:48

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Sazzy1969

Last activity on 09/04/2021 at 20:28

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I’m not sure , I seem to have them at night , my dog sleeps with me , he wakes me so I’m assuming that’s when I’m having one I feel exhausted .

How often do you have a seizure on average? https://www.carenity.co.uk/forum/epilepsy/symptoms-and-complications-of-epilepsy/how-often-do-you-have-a-seizure-on-average-2883 2019-08-06 21:48:36

Sunshine5

Edited on 19/01/2024 at 11:04

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Sunshine5

Last activity on 01/12/2024 at 12:35

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I currently have 3 to 4 Complex Partials a month. This has gone down from 5 a month between 2013 - 2022 after my brain surgery in 2012 to re-sect a benign tumour I've had since birth.

I had 140 seizures a month pre op until 31 years and 8 months. Now aged 43, epilepsy has affected my marriage and career. I can't work and this has affected my mental health and has affected my wife too. I'm Infertile and can't father children. My inability to provide financial security, mural support and children to my wife has affected her mental health too, even though she is supportive and doesn't blame me for being infertile. I have given her the right to divorce 8 years ago but she refused. Adoption was an option but with my difficulty in following instructions and understanding, adoption will only worse my marriage.

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syusuf

How often do you have a seizure on average? https://www.carenity.co.uk/forum/epilepsy/symptoms-and-complications-of-epilepsy/how-often-do-you-have-a-seizure-on-average-2883 2023-12-26 16:38:42

lesmal

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18/01/2024 at 09:43

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lesmal

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Last activity on 02/12/2024 at 18:10

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I have focal seizures every 7 to 10 days. The frustrating part of it is that the seizures then form in clusters of one after the other for 2 to 3 days after.

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Les

How often do you have a seizure on average? https://www.carenity.co.uk/forum/epilepsy/symptoms-and-complications-of-epilepsy/how-often-do-you-have-a-seizure-on-average-2883 2024-01-18 09:43:34

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How often do you have a seizure on average?

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