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I have cervical dystonia and suffer from the stare of others

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I have cervical dystonia and suffer from the stare of others

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Cervicaldystonia

05/03/2019 at 10:31

Good advisor

Cervicaldystonia

Last activity on 13/12/2020 at 12:40

Joined in 2019

34 comments posted | 15 in the Dystonia Forum

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Hello, I'm the first to talk, I hope I'm in the right place... I have cervical dystonia and the longer it goes on, the more it impacts my daily life. I feel like people are staring at me, that the girls I meet don't look at me very much... Is it in my head or do you have that feeling too?

Thank you very much...

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Unregistered member

05/10/2019 at 23:41

I have jackhammer esophogus which Botox injections where once mentioned by a consultant briefly?? Maybe it was a money decision not the quality of my life that was at the table that day, I wonder if I should ask again.

I have cervical dystonia and suffer from the stare of others https://www.carenity.co.uk/forum/dystonia/living-with-focal-dystonia/i-have-cervical-dystonia-and-suffer-from-the-s-2752 2019-10-05 23:41:32

Creamware2

30/09/2020 at 11:17

Creamware2

Last activity on 06/08/2024 at 09:57

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6 comments posted | 4 in the Dystonia Forum

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Hi, I have had focal Dystonia for 15years and have Botox in my neck roughly every 3 months . My last injections were in December and since then i have had 3 appointments cancelled due to covid. I have got steadily worse over the months, even walking creates tensions and pain. I have an appointment on this Friday and dreading looking in the post box. Anyone else in the same boat?

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charlesdickens99

19/01/2023 at 13:22

charlesdickens99

Last activity on 21/03/2023 at 12:35

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@Creamware2 Are you ok now?

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charlesdickens99

19/01/2023 at 13:22

charlesdickens99

Last activity on 21/03/2023 at 12:35

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9 comments posted | 4 in the Dystonia Forum

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I know what you mean.

I am pretty surprised how my neck "condition" impacted my self esteem and confidence.

I am quite mature and I could not look at anyone. Never felt like going out, etc...

I thought I could have handled this better.

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