Pain

@Gemma2803 Thank you for posting :) We have several members on here that use botox for their dystonia and they find it very helpful. @Mazza1959‍ @Cervicaldystonia‍ @whoami‍ @Paulphi‍ 

@Gemma2803 How are you now? I regularly get random pains, it is hard to know what is causing them.

Hi, thanks for posting. The botox has had no effect. I have so many other symptoms that I'm now doubting the diagnosis of cervical dystonia. 

@Gemma2803 usually the botox injections are almost like a miracle relief for cervical dystonia, so if you aren't having any relief, maybe you have been misdiagnosed. Definitely worth it to go back to the doctor and be as assertive as possible so they take you seriously!

Focal dystonia in my right hand and now in my back. I hurt my back a number of years ago and have largely been able to manage it.I had a period of stress last year and twinned with physical exertion have given myself a lot of anguish over the last year.I have bèen off work since may with severe back spasm at L 4 @ L 5 area with root narrowing. No-one seems to know what is going on. So as a stab in the dark i had a nerve block yestsrday and have some more movement today. It can take 4 weeks to fully take effect so fi gers crossed it will improve. Painkillers made no difference whatsoever.Namely Baclofan/Methocarbamol/Amytriptiline.They all just made me sleepy so you just cannot do anything.Worst year i have ever had.Please give me an outbreak of good health!!

To follow on from my previous post i have had multiple treatment since the but with little or no improvement. 

Brain/back/torso scans all assessed to be normal for a man of my age so that is hopefull.My Neurological Consultant has decreed that i need Neurological Physiotherapy so i have tried to source that locally and have found a place in Camlough,Ireland

Basically my torso muscles are weak and this he thinks are causing the spasms. So i am getting very specific physio to particular groups to strengthen these up and hopefully the spasms will reduce.I am also taking Clonasapam and allthough making me a bit tired i am off work at present so does not really matter as self-isolating. I am slightly optimistic that things are on the turn as am getting more movement in my torso area and was able to walk a short distance with relative ease  compared to recent attempts.So the next few wèeks are going to be intensive to get myself ready for work when the isolating restrictions are lifted.