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Involuntary muscle movements

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JosephineO

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05/03/2019 at 10:39

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JosephineO

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Last activity on 15/07/2024 at 09:21

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989 comments posted | 8 in the Dystonia Forum

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Hello,

One of the main symptoms of focal dystonia is the appearance of involuntary abnormal movements, related to the uncontrolled contraction of muscles.

Do you or your loved one suffer from it? Ask your questions here and share your experience to help other members. Is this common? Is it painful? Is it disabling?

>> More information on focal dystonia on the dedicated disease sheet here

This discussion is for you,

Josephine

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MalikaTabit

22/03/2019 at 23:27

MalikaTabit

Last activity on 31/03/2020 at 10:42

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2 comments posted | 2 in the Dystonia Forum

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Please would someone be able to advise me?

I am having problems getting a diagnosis.

The neurologist diagnosed me a few months ago,

But has discharged me without any further treatment .

He says it is anxiety based, but I have a lopsided jaw, kneck spasms, talking a nonsense language when overwhelmed.

And uncontrollable leg movements, and speach issues.

The mental health team.

Are saying I have dystonia!

Has anyone had this experience?

And if so what would you suggest I do?

Thank you.

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Involuntary muscle movements https://www.carenity.co.uk/forum/dystonia/symptoms-and-complications-of-focal-dystonia/involuntary-muscle-movements-2755 2019-03-22 23:27:32

Cervicaldystonia

25/03/2019 at 10:06

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Cervicaldystonia

Last activity on 13/12/2020 at 12:40

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34 comments posted | 15 in the Dystonia Forum

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@MalikaTabit Hello,

That sounds very distressing but it really sounds like dystonia, I don't understand why the doctors have thrown this back at you and made you believe that it is in your head?

Go to a different doctor and get a second opinion. My sister was sick with MS for years and she was told "it's stress" or "it's in your head". It was a horribly difficult time.

Go and find another doctor, you owe it to yourself.

For what it's worth, it sounds like dystonia to me.

Involuntary muscle movements https://www.carenity.co.uk/forum/dystonia/symptoms-and-complications-of-focal-dystonia/involuntary-muscle-movements-2755 2019-03-25 10:06:05

MalikaTabit

25/03/2019 at 19:48

MalikaTabit

Last activity on 31/03/2020 at 10:42

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2 comments posted | 2 in the Dystonia Forum

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Thank you so much for taking the time to reply to me.

I am sorry your sister went through this as well!

I will get a second opinion if I can?

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Involuntary muscle movements https://www.carenity.co.uk/forum/dystonia/symptoms-and-complications-of-focal-dystonia/involuntary-muscle-movements-2755 2019-03-25 19:48:12

Cervicaldystonia

29/03/2019 at 09:43

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Cervicaldystonia

Last activity on 13/12/2020 at 12:40

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34 comments posted | 15 in the Dystonia Forum

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@MalikaTabit Yes, you should make an appointment with another GP, you deserve to do what's right for you and get some answers! Unfortunately, we have to fight and persist in this world to get the care that we deserve!

Involuntary muscle movements https://www.carenity.co.uk/forum/dystonia/symptoms-and-complications-of-focal-dystonia/involuntary-muscle-movements-2755 2019-03-29 09:43:17

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charlesdickens99

19/01/2023 at 13:04

charlesdickens99

Last activity on 21/03/2023 at 12:35

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9 comments posted | 4 in the Dystonia Forum

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@Cervicaldystonia Have you tried to get GP appointment these days?

Involuntary muscle movements https://www.carenity.co.uk/forum/dystonia/symptoms-and-complications-of-focal-dystonia/involuntary-muscle-movements-2755 2023-01-19 13:04:22

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