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Patients Dystonia
Involuntary muscle movements
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MalikaTabit
MalikaTabit
Last activity on 31/03/2020 at 10:42
Joined in 2019
Please would someone be able to advise me?
I am having problems getting a diagnosis.
The neurologist diagnosed me a few months ago,
But has discharged me without any further treatment .
He says it is anxiety based, but I have a lopsided jaw, kneck spasms, talking a nonsense language when overwhelmed.
And uncontrollable leg movements, and speach issues.
The mental health team.
Are saying I have dystonia!
Has anyone had this experience?
And if so what would you suggest I do?
Thank you.
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M
Cervicaldystonia
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Cervicaldystonia
Last activity on 13/12/2020 at 12:40
Joined in 2019
34 comments posted | 15 in the Dystonia Forum
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@MalikaTabit Hello,
That sounds very distressing but it really sounds like dystonia, I don't understand why the doctors have thrown this back at you and made you believe that it is in your head?
Go to a different doctor and get a second opinion. My sister was sick with MS for years and she was told "it's stress" or "it's in your head". It was a horribly difficult time.
Go and find another doctor, you owe it to yourself.
For what it's worth, it sounds like dystonia to me.
MalikaTabit
MalikaTabit
Last activity on 31/03/2020 at 10:42
Joined in 2019
Thank you so much for taking the time to reply to me.
I am sorry your sister went through this as well!
I will get a second opinion if I can?
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M
Cervicaldystonia
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Cervicaldystonia
Last activity on 13/12/2020 at 12:40
Joined in 2019
34 comments posted | 15 in the Dystonia Forum
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@MalikaTabit Yes, you should make an appointment with another GP, you deserve to do what's right for you and get some answers! Unfortunately, we have to fight and persist in this world to get the care that we deserve!
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charlesdickens99
charlesdickens99
Last activity on 21/03/2023 at 12:35
Joined in 2023
9 comments posted | 4 in the Dystonia Forum
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@Cervicaldystonia Have you tried to get GP appointment these days?
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JosephineO
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JosephineO
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Last activity on 15/07/2024 at 09:21
Joined in 2018
989 comments posted | 8 in the Dystonia Forum
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Hello,
One of the main symptoms of focal dystonia is the appearance of involuntary abnormal movements, related to the uncontrolled contraction of muscles.
Do you or your loved one suffer from it? Ask your questions here and share your experience to help other members. Is this common? Is it painful? Is it disabling?
>> More information on focal dystonia on the dedicated disease sheet here
This discussion is for you,
Josephine