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Patients Acromegaly
Your diagnosis
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tammy79
tammy79
Last activity on 21/04/2020 at 21:19
Joined in 2016
4 comments posted | 4 in the Acromegaly Forum
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My symptoms started in or around 2000 but was diagnosed in 2005
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sisi21
sisi21
Last activity on 23/04/2021 at 18:11
Joined in 2016
same with me: it took them 5 years to figure out what was wrong... hormone tests confirmed the disease
Unregistered member
What were peoples IGF-1 hormone leves? Mine is 36.1 is this high?
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Living with diseases affecting muscles, joints and-or skeleton
Life after a joint replacement: Share your experiences and advice!
Unregistered member
I had a hip replacement 16 months ago due to osteoarthritis. I can honestly say it was the best decision I have ever made. Yes I was not looking forward to everything post op, but I am now 100% mobile and after not being able to walk any distances I now enjoy walking again and I've managed to lose 2.5 stones. Totally pain free and I've had lots of comments about how much happier I look - my face was obviously showing my pain. If you have any questions please ask!
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Living with diseases affecting muscles, joints and-or skeleton
Life after a joint replacement: Share your experiences and advice!
Unregistered member
I had a hip replacement 16 months ago due to osteoarthritis. I can honestly say it was the best decision I have ever made. Yes I was not looking forward to everything post op, but I am now 100% mobile and after not being able to walk any distances I now enjoy walking again and I've managed to lose 2.5 stones. Totally pain free and I've had lots of comments about how much happier I look - my face was obviously showing my pain. If you have any questions please ask!
See the best comment
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Margarita_k
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Margarita_k
Community manager
Last activity on 07/10/2020 at 11:39
Joined in 2016
1,195 comments posted | 8 in the Acromegaly Forum
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It may take 7 to 10 years before the first symptoms appear and you are diagnosed.
In your case, how much time did it pass before you were diagnosed with acromegaly?
Share your story with other members!