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Patients Acromegaly
Acromegaly — Get to know each other and share your daily experiences!
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Heybex
Heybex
Last activity on 13/12/2024 at 17:16
Joined in 2024
Patient, Acromegaly since 2024
1 comment posted | 1 in the Acromegaly Forum
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Hi all, I'm Bex (or Bec or Becca but never Becky lol). I've been knowingly living with acromegaly for about 12 years. Tumour was operated on but they couldn't remove it all due to it's position. I call my tumour Sid the Squatter....a tip that someone gave me so when you are feeling rubbish you can have a rant at the tumour by name!
Recently found out that Sid is no longer responding to treatment and I will need to have radiotherapy. This came as a massive shock and it's taken me a while to get my head around it (pardon the pun!).
Anyway, hope everyone is well. Best wishes, Bec
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I had a hip replacement 16 months ago due to osteoarthritis. I can honestly say it was the best decision I have ever made. Yes I was not looking forward to everything post op, but I am now 100% mobile and after not being able to walk any distances I now enjoy walking again and I've managed to lose 2.5 stones. Totally pain free and I've had lots of comments about how much happier I look - my face was obviously showing my pain. If you have any questions please ask!
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Living with diseases affecting muscles, joints and-or skeleton
Life after a joint replacement: Share your experiences and advice!
Unregistered member
I had a hip replacement 16 months ago due to osteoarthritis. I can honestly say it was the best decision I have ever made. Yes I was not looking forward to everything post op, but I am now 100% mobile and after not being able to walk any distances I now enjoy walking again and I've managed to lose 2.5 stones. Totally pain free and I've had lots of comments about how much happier I look - my face was obviously showing my pain. If you have any questions please ask!
See the best comment
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Somya.P
Community managerGood advisor
Somya.P
Community manager
Last activity on 23/12/2024 at 18:15
Joined in 2023
434 comments posted | 10 in the Acromegaly Forum
38 of their responses were helpful to members
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Hello everyone,
How are you feeling today?
I’m starting this new discussion as a space for you to introduce yourselves, share your daily life experiences, or talk about topics that interest you—whether they’re related to your health or not. It’s a great opportunity to exchange support and advice as when navigating life with acromegaly.
@Heybex @Maria1303 @NickyP18 @Rudibici @Janmilakovic @QueenPea3 @Lolawitala @Peppermini @Joanna64 @Charlotte_Daus @Caroline#7 @Hollybear @estherwhite @gcahill @barryberry @Maggieherb @Emmad1111 @martdou @helenk26 @Manuela @Spike1
To break the ice, why not begin by introducing yourself briefly?
Feel free to share your challenges and triumphs, whether they’re related to living with the condition or anything else in your life.
Thank you for being part of this discussion, and remember—you’re not alone in your journey with acromegaly.
Wishing you strength and support today,
Somya from the Carenity team 🌼