Back

Patients Ulcerative colitis

Has lockdown affected your symptoms?

63 views
12 times supported
9 comments

Kerry_g

15/06/2020 at 20:51

Good advisor

Kerry_g

Last activity on 19/04/2021 at 11:07

Joined in 2020

6 comments posted | 5 in the Ulcerative colitis Forum

Rewards

Good Advisor
Explorer

View profileView Add a friendAdd Write

Hi,

I’m curious to know how everyone has been since lockdown started?

I feel like everytime I leave the house I have the urgent need to use a bathroom but I wonder if it’s more of a psychological thing and I’m just overthinking the fact that it’s not possible to use public bathrooms now. I get really paranoid and anxious that I will need to go and there won’t be a bathroom available then the more I think about it the more I need to go.
Does this happen to anyone else?

All comments

Courtney_J

Community manager

16/06/2020 at 12:22

Good advisor

Courtney_J

Community manager

Last activity on 13/10/2022 at 16:47

Joined in 2020

1,280 comments posted | 21 in the Ulcerative colitis Forum

10 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Messenger
Committed
Explorer
Evaluator

View profileView Add a friendAdd Write

@Kerry_g Hello Kerry_g, thank you for starting this discussion! Let me tag some members who can also share their experience with this.

Hello all, how are you today? emoticon cute Have you noticed any changes in your UC symptoms since the lockdown started? Have you experienced the same anxiety as Kerry_g? Feel free to share your thoughts and experiences here!
@Rachel_short‍ @alun1942‍ @Kerrycoote‍ @Zeekhan01‍ @Elle21‍ @MAG567‍ @Sarahvw‍ @Pwarrington‍ @Jojodempse‍ @Dianew2‍ @Maggie127‍ @SamFrancis‍ @Jemmagee‍ @blackcabmike123‍ @JanThompson‍ @Maggiem1959‍ @kellyp‍

Take care,
Courtney

See the signature

Courtney_J, Community Manager, Carenity UK

Has lockdown affected your symptoms? https://www.carenity.co.uk/forum/ulcerative-colitis/living-with-ulcerative-colitis/has-lockdown-effected-your-symptoms-3469 2020-06-16 12:22:16

Pwarrington

16/06/2020 at 12:36

Pwarrington

Last activity on 13/03/2021 at 14:02

Joined in 2020

2 comments posted | 2 in the Ulcerative colitis Forum

Rewards

Explorer
Newsfeeder

View profileView Add a friendAdd Write

Hi Kerry. Yes I am currently going through a flare up. The first in a few years and boy it's back worse than ever. I don't feel particularly stressed although the weekly food shop experience does make me feel anxious.

Has lockdown affected your symptoms? https://www.carenity.co.uk/forum/ulcerative-colitis/living-with-ulcerative-colitis/has-lockdown-effected-your-symptoms-3469 2020-06-16 12:36:00

Sarahvw

16/06/2020 at 14:57

Sarahvw

Last activity on 08/07/2020 at 00:14

Joined in 2020

1 comment posted | 1 in the Ulcerative colitis Forum

Rewards

Explorer

View profileView Add a friendAdd Write

Hi there. I came out of remission 3 weeks ago and yes it's pure hell right now. Double dosing on my Octasa, cant go any higher and taking Prednisolone foam again, nothing working. Not sure what the next step will be, and yes I hate food shopping when it flares up, infact I'm scared to go out incase of an accident if you get my drift! 😔

See the signature

S V Warren

Has lockdown affected your symptoms? https://www.carenity.co.uk/forum/ulcerative-colitis/living-with-ulcerative-colitis/has-lockdown-effected-your-symptoms-3469 2020-06-16 14:57:51

Kerry_g

16/06/2020 at 20:44

Good advisor

Kerry_g

Last activity on 19/04/2021 at 11:07

Joined in 2020

6 comments posted | 5 in the Ulcerative colitis Forum

Rewards

Good Advisor
Explorer

View profileView Add a friendAdd Write

@Sarahvw it’s horrible when nothing is working and you don’t know what’s next! Keeping my fingers crossed for you that you start feeling a bit better soon! I’m in the exact same boat with being scared to go out too 😞

See the signature

Kerry Gillespie

Has lockdown affected your symptoms? https://www.carenity.co.uk/forum/ulcerative-colitis/living-with-ulcerative-colitis/has-lockdown-effected-your-symptoms-3469 2020-06-16 20:44:23

Kerry_g

16/06/2020 at 20:45

Good advisor

Kerry_g

Last activity on 19/04/2021 at 11:07

Joined in 2020

6 comments posted | 5 in the Ulcerative colitis Forum

Rewards

Good Advisor
Explorer

View profileView Add a friendAdd Write

@Pwarrington Sorry to hear this! Hope your flare doesn’t last too long and you start feeling a bit better soon!

See the signature

Kerry Gillespie

Has lockdown affected your symptoms? https://www.carenity.co.uk/forum/ulcerative-colitis/living-with-ulcerative-colitis/has-lockdown-effected-your-symptoms-3469 2020-06-16 20:45:08

Pwarrington

16/06/2020 at 21:19

Pwarrington

Last activity on 13/03/2021 at 14:02

Joined in 2020

2 comments posted | 2 in the Ulcerative colitis Forum

Rewards

Explorer
Newsfeeder

View profileView Add a friendAdd Write

Thanks Kerry. Me too, finally felt comfortable enough to go back to work today after a week at home.

Has lockdown affected your symptoms? https://www.carenity.co.uk/forum/ulcerative-colitis/living-with-ulcerative-colitis/has-lockdown-effected-your-symptoms-3469 2020-06-16 21:19:18

pancake

18/06/2020 at 10:46

Good advisor

pancake

Last activity on 19/04/2023 at 13:30

Joined in 2017

13 comments posted | 10 in the Ulcerative colitis Forum

Rewards

Good Advisor
Contributor
Messenger
Explorer

View profileView Add a friendAdd Write

@Kerry_g I've been having more issues too, I think it's the stress, especially having to go back to work and working at a grocer's. Ever since I've gone back I've been in and out of the toilet, I think it's driving my bosses mad, but I have no choice.

Has lockdown affected your symptoms? https://www.carenity.co.uk/forum/ulcerative-colitis/living-with-ulcerative-colitis/has-lockdown-effected-your-symptoms-3469 2020-06-18 10:46:32

insaino86

03/07/2020 at 02:24

insaino86

Last activity on 11/07/2020 at 16:18

Joined in 2020

3 comments posted | 3 in the Ulcerative colitis Forum

Rewards

Explorer

View profileView Add a friendAdd Write

The lockdown has currently coincided with my worst flare up to date. Which has gotten worse the longer it has gone on

Has lockdown affected your symptoms? https://www.carenity.co.uk/forum/ulcerative-colitis/living-with-ulcerative-colitis/has-lockdown-effected-your-symptoms-3469 2020-07-03 02:24:27

MissFibro

10/07/2020 at 16:04

Good advisor

MissFibro

Last activity on 10/07/2020 at 15:55

Joined in 2017

19 comments posted | 3 in the Ulcerative colitis Forum

Rewards

Good Advisor
Contributor
Explorer

View profileView Add a friendAdd Write

@insaino86 I've seen this too in myself. I also have fibromyalgia and both conditions have never been worse than in lockdown.

Has lockdown affected your symptoms? https://www.carenity.co.uk/forum/ulcerative-colitis/living-with-ulcerative-colitis/has-lockdown-effected-your-symptoms-3469 2020-07-10 16:04:32

Members are also commenting on...

Articles to discover...

09/10/2024 | Testimonial

UC & IBS: “I felt like I was the only one dealing with this painful and embarrassing condition.”

19/05/2024 | News

Joint Pain and Swelling in Inflammatory Bowel Disease (Crohn's Disease and UC)

08/12/2023 | News

What is the link between chronic inflammatory bowel disease (IBD) and eye disorders?

24/07/2023 | News

Everything you need to know about digestive and urinary stomas!

12/02/2019 | Advice

Photo Testimonial: Irritable bowel syndrome prevents people from living

12/01/2016 | News

Crohn’s disease, ulcerative colitis tied to anxiety and depression

05/05/2020 | News

Gastrointestinal Disorders and the Coronavirus

26/04/2017 | Testimonial

Daily life with ulcerative colitis

Has lockdown affected your symptoms?

All comments

Give your opinion

What do you think about the Carenity Forum and community?

What are your expectations from Carenity and what would you like to see in the future?

How were you diagnosed?

Members are also commenting on...

Articles to discover...

Medication fact sheets - patient opinions...