- Home
- Share
- Forum
- Rheumatoid arthritis Forum
- Living with rheumatoid arthritis
- Rheumatoid arthritis - Advice
Patients Rheumatoid arthritis
Rheumatoid arthritis - Advice
- 42 views
- 1 support
- 7 comments
All comments
Polina.K
Community managerGood advisor
Polina.K
Community manager
Last activity on 11/08/2023 at 12:02
Joined in 2023
89 comments posted | 6 in the Rheumatoid arthritis Forum
12 of their responses were helpful to members
Rewards
-
Good Advisor
-
Contributor
-
Messenger
-
Explorer
-
Friend
Hey @jamesm! How are you feeling today?
Thank you for starting this discussion!
I will tag some members who might be going through something similar and hopefully, we can all discuss and support one another. :)
@Raythebaker @QueenB @YorkshireJayne @Mandy59 @lacemaker @PollyP @b.lane @JazzyC @KPangela @EmmyJane @Maxitwist @GG2019 @PatsyMS @Heatheruk @Queen10 @Rosebud1967 @Tatjana @Laurajayne
Hey everyone! How are you?
Are you having issues with your lower back or legs? Do you have difficulty walking? Share your story here!
Take care,
Polina from the Carenity team
Close all
See more replies | 2
See the responses
YorkshireJayne
Good advisor
YorkshireJayne
Last activity on 17/07/2024 at 07:17
Joined in 2021
92 comments posted | 29 in the Rheumatoid arthritis Forum
16 of their responses were helpful to members
Rewards
-
Good Advisor
-
Contributor
-
Messenger
-
Committed
-
Explorer
-
Evaluator
@Polina.K I have had "issues" with my lower spine since I was 21 (I'm now 63). Each episode got worse, until at 32 I had to have emergency surgery to alleviate numbness from my waist downwards to my toes. I had an L5/S1 laminectomy and discectomy then, which alleviated some of the numbness, leaving me with the back of my right leg without feeling, but it relieved the rest of it. As time has gone on, I have slowly started having problems with the rest of my spine and discovered that I have the gene which causes Ankylosing Spondylitis; although doctors and so called speciaists are reluctant to diagnose it, even though I have classic symptoms. A recent scan shows that I have severe degeneration of my discs, have stenosis and bone spurs in my neck and lower back and a slight curve to the middle of it. I take high end painkillers and have other joint issues, yet no-one will tell me that I have anything except osteoarthritis/wear and tear due to age! I've been like it since I was young!
See the signature
Life is for living, do it, no matter what!
Mandy59
Good advisor
Mandy59
Last activity on 28/10/2024 at 16:38
Joined in 2017
182 comments posted | 16 in the Rheumatoid arthritis Forum
7 of their responses were helpful to members
Rewards
-
Good Advisor
-
Contributor
-
Committed
-
Explorer
-
Evaluator
@YorkshireJayne
Thank you so much for your advice. I shall follow up on it. There are other problems l experience to do with “below the waist “ but they have been put down to my age. I am now 64 & l no longer socialise due to that problem. For years l have told them of my “accidents “ but l get its your age. Years ago l had a camera inserted in to my bladder but the only thing they found was l have 3 kidneys lol. I have asked to be referred to a department that deals with bladder/ bowel problems but 6 months later l am still waiting.
See the signature
M.Flood
YorkshireJayne
Good advisor
YorkshireJayne
Last activity on 17/07/2024 at 07:17
Joined in 2021
92 comments posted | 29 in the Rheumatoid arthritis Forum
16 of their responses were helpful to members
Rewards
-
Good Advisor
-
Contributor
-
Messenger
-
Committed
-
Explorer
-
Evaluator
@Mandy59 Please do, once PALS get involved, you should get the help you need pretty quickly! Three kidneys? That's just greedy LOL Seriously though, I hope you get sorted out soon. As I said, I'n 63 and have had problems for a long time, but never with my bladder until I've reached this age, mine has been attributed to the fact that one kidney retains a spoonful of urine each time I go. I've never had problems holding it back, not even when I had two children or when I went numb, must be strong muscles!
See the signature
Life is for living, do it, no matter what!
Mandy59
Good advisor
Mandy59
Last activity on 28/10/2024 at 16:38
Joined in 2017
182 comments posted | 16 in the Rheumatoid arthritis Forum
7 of their responses were helpful to members
Rewards
-
Good Advisor
-
Contributor
-
Committed
-
Explorer
-
Evaluator
@YorkshireJayne
l too have two children & never had problems after having them with my bladder.
l can feel l need to go but then get pain & all it’s all stations go. 🙄 When l am at home l can cope but when l am at the hospital for my 6 monthly infusion treatment l have constant stress about it. After being examined l have been told it’s my age, weight, l will admit as l have got older l have got a little chubby, or it’s been blamed on my mobility. I never imagined l would be a prisoner in the loo at this age.
Thanks again for your advice . Take care & have a good day 😊
See the signature
M.Flood
Hide the responses
Give your opinion
Members are also commenting on...
Living with rheumatoid arthritis
Rheumatoid arthritis diagnosis: What kind of tests did you undergo?
Articles to discover...
09/09/2024 | News
23/08/2023 | Testimonial
Dietitian Tanya helps the Lupus community to reduce their symptoms with diet and healthy living.
19/04/2023 | Testimonial
03/10/2018 | Advice
09/05/2016 | Advice
Rheumatoid Arthritis: Risks and Benefits of Chemotherapy Treatments
03/01/2019 | Advice
Photograph Testimonial: Continuing to work with rheumatoid arthritis
Medication fact sheets - patient opinions...
Subscribe
You wish to be notified of new comments
Your subscription has been taken into account
jamesm
Good advisor
jamesm
Last activity on 27/10/2024 at 20:56
Joined in 2016
46 comments posted | 3 in the Rheumatoid arthritis Forum
14 of their responses were helpful to members
Rewards
Good Advisor
Contributor
Messenger
Explorer
I am having issues with my lower back and legs Spinal Stenosis is suspected I have difficulty walking and my legs lose feeling i have Rheumatoid Arthritis and L,4 & 5 disc damage does anyone have same issues