Life with fibromyalgia

hi im Kerry from London , semi diagnosed 18mnths ago , new to this :S would welcome any advice tips and to seek friendly people who actually understand what it is to deal with this ! and im a great listener to ! I suffer leg -arm-hand weakness constant on left side less on right side , all  info ive seeked out dosent really mention this symptom ? I wonder does anyone else get this or am I an oddity ?! thanks :)

Hi all, I'm Carrie and I'm 35 with three young kids. I'm on pregablin, fentanyl patches and cymbalta  nothing controls this pain. I've tried tens, tse machine, heat pads, ice pads, walks stretches etc. I also have elders danlos, high blood pressure and chlorestral and osteoarthritis in my spine. It's so much to cope with. But it's the pure exhaustion and tiredness which knocks me off my feet for days at a time I can't cope with. Is there anything I can do to help relieve this!

I can agree with your comments Pauline (tinballs41) I was diagnosed in 2000 and it took me several years to come to terms with the syndrome. I was a very active person and it strips you of the person you once were and being spontaneous. I do believe in alternative therapies..reflexology sure gives me relief from this terrible illness. On the outside we look normal but to me I describe myself of being trapped in an old Biddy's body!! 

hi im Kerry , new to this site an still learning my way round it , im in middle of yet another fybro flare change in weather :/ , my doctors recently told me to take glucosamine & chlondrotin sulphate to help with the osteoarthritis , I wonder if anybodys already tried this and did it make a difference ? I understand everybodys different ! but it helps to have some opinions :D many thanks

I have had a rough day my Fibromyalgia has left me sore all over, although I would say my hips are the worse part of me making walking or lying down very uncomfortable; I think it is due to the cold weather, as when I was in Spain mid September my pains were almost non exsistant.

ditto Heather and I think the weather does have an impact on how we are, I am struggling so much at the moment wish I could float around on a nice soft fluffy cloud, no pressure anywhere.  Kerry I take Celebrex for my Arthritis and it does help with the fibro pain too.

Good news.  My flare up ended and my move went much better than I expected.  I didn't have too much pain and my energy levels lasted until about 4pm when I had a nap.  It was so good to be be feeling so well.

On the other hand I saw my new GP yesterday and she is intent on weaning me off tamezepam and morphine.  She says that morphine doesn't help fibromyalgia but I've found that it does help my pain at night.  I'm going to follow her request and see how I go.  Ive also asked for a referral to St Thomas' Hospital in London which is a centre do excellence as the fibromyalgia offerings at the local hospital are rather limited.  

I have found that actipatch is quite useful for my hand pain. It doesn't always work but it is a drug free option of relieving pain and worth a try.  I got mine online from Boots. It was 19.99 And lasts for about 720 hours of switched on time.

wishing you all well.

Just when I thought I was getting some relief from FM pain the drop in temperature these Autumn mornings and evenings is playing havoc with my body, so much, so that I have doubled the amount of soluble co codamol tablets I take in the day in conjunction with my regular Pelexia SR 50mg twice daily and Naproxen 500mg daily.  

Do any of you lovely people on here wake up in the morning to a feeling like there is a golf ball stuck in the back of your throat ? X

Hi , I'm new to this site and recently diagnosed with fibromyalgia. Does anyone else struggle with going to work? I've had so much time off, reduced my hours and can't afford to give it up. Any help appreciated in any way.