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How do you feel today?
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lesmal
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lesmal
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Last activity on 02/04/2025 at 16:37
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I've now gone off Clobazam and am taking Fycompa the last 2 weeks. Side effects are depression, irritability and loss of balance. So far so good, but more seizures. I will continue in the meantime and hopefully things will settle.
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Les
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Tigger.co.uk
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Last activity on 31/03/2025 at 19:08
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@lesmal thank you i will try can't sleep my head keeps pounding but I have to keep up talk to you all again soon when everything gets better love and hugs to everyone
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chrissie2018
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chrissie2018
Last activity on 02/04/2025 at 18:02
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@Tigger.co.uk so sorry to hear you lost a dear friend I lost my best friend back in April to cervical cancer at the age of 51. We had been friends for 33 years. My thoughts are with you and huge hugs x
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C Newton
Tigger.co.uk
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Last activity on 31/03/2025 at 19:08
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765 comments posted | 118 in the Living with depression group
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@chrissie2018 it's really hard since Jan I have lost 4 special friends when your young you don't notice so much but now I am 70 and they're all around that age it hurts more I am going to miss them all I spent this week with my last friend. Family and it's been so hard as it was so quick her passing hopefully there won't be anymore upsets this Yr, one of my friends died the same day my great grandson was born exactly the same night so that was sad one moment and happy the next
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mr chipps
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mr chipps
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@lesmal hello my friend i am living with vertigo and my balance is seriously affected when i am stood or walking. i am still waitin fr bowel surgery
how is you epilepsy affecting you and were you ever taking epilim medication ? which is now. i believe subject of investigation and compensation claims ? my daughter was born with epilepsy, but stat that she no longer is living with it ? i am dubious of this as i believed it was incurable, as you will know ?
i am still having issues with ulcerative colitis and waiting for surgery to fit a stoma. how is you husband and his health issues ?
keith xx
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lesmal
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lesmal
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Last activity on 02/04/2025 at 16:37
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An update... At long last I am titrating down from Fycompa 4mg. to 2mg and feel just the difference in dosage has made me not as angry, depressed and miserable. One more week to go then off the medication. It is amazing how a medication can affect one's thinking pattern and more. Sending love to allxxx
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Les
SP3RDN4
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SP3RDN4
Last activity on 31/03/2025 at 19:57
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Horrendous weekend, not much better today as far as mood in concerened.
thelicencee
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thelicencee
Last activity on 28/02/2025 at 18:48
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Not been to good for a while, the slightest thing or memory sets me off into a crying stage which only makes me feel worse.
Still only getting "cat naps" instead of "proper" sleep, so never seem to have any energy.
My acute depression is continual and pressurised by the ever present loneliness and lack of companionship and the thought of having to do the same thing, every lonely day, only makes the final day even more inviting.
Somya.P
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Somya.P
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Hello everyone,
How are you today? 😊
I'd like to take the liberty of relaunching this discussion to find out how you're feeling at the moment?
Has the year got off to a good start for you? What are your plans for 2025?
Take care of yourself,
Somya from the Carenity Team 🌼
@sitchie @annie o @Scrowther @Perdita @Keith1265 @Aci1984 @esmerelda @sashajezebel @yerweepal @Christina23 @Pinky58 @thelicencee @Keith walker @ShabbyTiger @Mousymal @TabbyCat @qwertyqueen @satanicminster @crowbar_068 @cocorocks @jamesm @flash910 @Pete56 @CLIFFTOP678789 @florazey @Beccyep @r4chie43 @jackoxx @liansharp @vespa23 @Tigger.co.uk @MistyMoo @Jonbon31 @missytb @annafielding @paulhrrsn3 @BertaC @Mark_O @MILERO @Pccogni @Neens54 @Bigj1969 @Jazziehood @fizzy66 @Icemaiden @Lesjon @Calia160 @lion997 @NannasGirl1982 @Susie6 @Scrowther @Pinky58 @fernster @jamesm @Tigger.co.uk @happylad1970 @smokitcat @annafielding @chrissie2018 @SP3RDN4
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Somya from the Carenity team 🌼
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Tigger.co.uk
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Tigger.co.uk
Last activity on 31/03/2025 at 19:08
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765 comments posted | 118 in the Living with depression group
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@Somya.P I've always lived in England I wouldn't want to live anywhere else, because I don't think I could have managed with the different climates in other countries, I don't like it to hot and I don't like it when it is really cold so but who knows I just love my own country, and being ill with all the illness I have means I would have never managed in another country because it would have made things worse
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Somya.P
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Somya.P
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@Tigger.co.uk Hi,
Thank you for sharing your thoughts—it’s wonderful to hear how much you appreciate living in England. 🌧️☀️ It sounds like you’ve really considered how different climates could affect your health, and it’s great that you’ve found comfort in your surroundings here.
- What is it about England that you love the most—maybe the changing seasons or something about the culture?
- If you could visit another country for a short time, is there somewhere you’d be curious to explore despite the climate?
It’s lovely to hear how you’ve embraced where you are, and your story might inspire others to think about the impact of their environment on their health. 😊
Take care,
Somya from the Carenity Team 🌷
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Somya from the Carenity team 🌼
Tigger.co.uk
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Tigger.co.uk
Last activity on 31/03/2025 at 19:08
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765 comments posted | 118 in the Living with depression group
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@Somya.P it's my home we have wonderful places in England so why would I want to go anywhere else and it's the only place I would feel happy in, I have so many illnesses to cope with and our hospitals are the best I know we have struggles in our country but this is my place and I wouldn't want to lose my roots for anyone and it is safer, our laws our rule this is the place for me
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lesmal
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lesmal
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Last activity on 02/04/2025 at 16:37
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@Somya.P I lived in Africa for 60 years and have now lived in Northern Ireland for 7 and more. I only miss the weather in Africa but am happy with our life here now. We are lucky to have free transport, free medical and both my husband and I are well looked after by our doctors and the health care system. I am involved in voluntary work also which keeps me well occupied and I love giving back to the community.
Every country has its problems but living one day at a time makes living my life worthwhile.
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Les
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Sunshine5
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Sunshine5
Last activity on 01/04/2025 at 19:21
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Hi everyone, I have felt rather low this January. Not been able to get out of the house for walks has made me feel very low, and as I suffer from epilepsy, I begin to question that I would have other alternatives if I was able to drive, to go to events etc.
I then often blame myself for my difficulty in connecting with my wife and feel I don't deserve to live with anyone.
The snow has melted and although it's cold I was intent on going for a long walk yesterday and to the gym today. I can cope with the rain but when it's everything heavy rain, wind and bitterly cold, it puts you off doing things.
I don't believe in New Years resolutions, just trying to get back to my gym routine but also exploring activities to do such as painting in a class, carpentry or pottery. Unfortunately these are quite pricey and I am paying off a credit card bill for my holiday I went last month with my wife. I will pay it off in a few months as I'm paying more than the minimum.
I guess I will have to wait until I've paid it off to enjoy life again. It was my only holiday last year having planned to go to see my in-laws 3 weeks and 1 week holiday in Zanzibar.
I can do art at home but as for the other 2 I have not done before and would need to take a few classes.
Living with epilepsy has affected my mental health from time to time but I just have to live with it. I know that there are many people suffering from Clinical Depression, I have been referred to a Psychiatrist and offered medication. Side effects included weight gain and I'm overweight and high cholesterol so really the medicine will only put me at risk of getting cardiovascular disease.
Epilim to treat epilepsy my Epilepsy Specialist told me at a high dose causes an increase in appetite as that part of the brain is affected. I'm on a lower dose now and taking Clobazam and Briviact.
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SP3RDN4
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SP3RDN4
Last activity on 31/03/2025 at 19:57
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@Somya.P Sorry, this will be a long post. This year hasn't started off brilliantly but it's not been a complete disaster. My mood has been quite low throughout the winter, maybe SAD related? I have just returned from a short break with another coming up shortly, which I rearranged from last year, as I went through quite a severe mental crash last summer. I did mention it in a post on this forum at the end of last year. I had arranged 2 foreign trips, as I enjoy travelling but I woke up in the early hours one Sunday and decided I couldn't do it, hence rearranging one of the trips. I have some serious thinking to do in the coming months but I'm aware that this must not turn into overthinking and take life as it comes.
lesmal
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lesmal
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Last activity on 02/04/2025 at 16:37
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@Sunshine5 Thinking of you as I've lived with epilepsy for 51 years now. It is so frustrating when medication is changed regularly and all the side effects come with it. I'm currently under a new neurologist and can only hope things will get better in the months ahead. I'm going through a bad phase at the moment and often wonder if it's all worthwhile? My husband has prostate and skin cancer so his care takes a toll on me also.
I'm always here to talk to as a friend.
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Les
Sunshine5
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Sunshine5
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@lesmal hi , yes I understand how changing medications can take its toll. My wife is in her early 40s and already showing signs of arthritis on her finger joints(she says it's genetic) so a little concerned about that but looking after myself is important without wanting to risk further seizures worrying too much about those close to me. I feel frustrated that both surgery and ongoing seizure medication does not control my seizures (half my seizures are improvoked) with no actual reason. No stress etc, although I'm unemployed I feel I just don't know what to do with myself, this in itself could be a trigger for my seizures too. I have tried more than a dozen AEDs and non of them have helped my seizures. Surgery has definitely reduced my seizures undoubtedly. It's the long term impairments I endure having had hundreds of seizures before my operation and the procedure too I was told would affect my memory and understanding complex tasks.
I am exploring what I can do such as volunteering etc and group activities. If I can do that I will worry less and perhaps my seizures (currently 3 to 5 complex partial absences) a month might go down. Last Tuesday I managed to stop a seizure, it was coming and I turned my face towards the wall and distracted my mind and the seizure stopped.
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helsinki
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Last activity on 13/03/2025 at 18:20
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Ive now got Tinnitus in my left year . Any tips. I wear hearing aids
Dont like getting older and fear death.This seems to be a forefront though these days. I want to live longer but have no interest in things. My oomph has gone so I force myself to do things rather that wanting to do things. I dont like being in groups and maybe thats it…
Any suggestions. Love to you al xx
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helsbels
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JosephineO
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JosephineO
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Hello,
Dealing with depression means that every day can be different. So, how are you feeling today? Are you having a good or bad day?
Please share :)