Are you satisfied with the care you've received for AS?

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CaryHutton

09/02/2022 at 23:58

CaryHutton

Last activity on 28/02/2022 at 09:59

Joined in 2022

3 comments posted | 3 in the Living with ankylosing spondylitis group

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I've finally officially been diagnosed with ankylosing spondylitis after years of fighting with my GP and the NHS. Is it just me, or have I just been unlucky with the doctors that have dealt with my case? I would be interested if anyone else had had the same so-called treatment as I have..

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Courtney_J

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10/02/2022 at 18:40

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Courtney_J

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Last activity on 13/10/2022 at 16:47

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1,280 comments posted | 21 in the Living with ankylosing spondylitis group

10 of their responses were helpful to members

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Hello @CaryHutton, thank you for sharing with us. I know it can be frustrating when you don't feel like you've been listened to or that you've received adequate care.

For our other members, what do you think of the treatment you've received for your AS? Did it take a long time to get your diagnosis? Do you feel like your doctors listen to your questions and concerns? Did you have any say in the choice of treatment?

@Wafaa.elhoucini @WhiteWolf @BakuBunny @richard0804 @Jason1 @thedavid @sASha! @CynthiaC @liamjcross @1976apache @Coling @Missy2 @danjoshaw60 @eileengreen @saxon49 @Joduell @Moke772162 @Catblonde

Take care,

Courtney

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Courtney_J, Community Manager, Carenity UK

Are you satisfied with the care you've received for AS? https://www.carenity.co.uk/forum/other-discussions/living-with-ankylosing-spondylitis/dealing-with-doctors-for-as-4525 2022-02-10 18:40:46

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21/02/2022 at 14:40

Hello @CaryHutton I must class myself as very, very lucky to have had the very best of care imaginable. My Consultant at the Royal Hospital for Rhumatic Diseases in Bath, Bath and North East Somerset, Raj Sengupta has involved me in any and all treatments over the last 17 years.

I am so sorry to hear of your experiences, you should be able to ask your consultant to keep you in the loop regarding your treatments.

Wishing you Good Luck @ richard0804

Are you satisfied with the care you've received for AS? https://www.carenity.co.uk/forum/other-discussions/living-with-ankylosing-spondylitis/dealing-with-doctors-for-as-4525 2022-02-21 14:40:09

GloriaG

04/03/2022 at 03:34

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GloriaG

Last activity on 28/02/2023 at 00:50

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107 comments posted | 47 in the Living with ankylosing spondylitis group

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You are lucky to have a specialist not too far away. Here it is a four hour drive there and back again through mountainous roads, which is agonizing for me. Count your lucky stars. G

Are you satisfied with the care you've received for AS? https://www.carenity.co.uk/forum/other-discussions/living-with-ankylosing-spondylitis/dealing-with-doctors-for-as-4525 2022-03-04 03:34:50

Ankyloo

04/03/2022 at 10:53

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Ankyloo

Last activity on 17/03/2022 at 10:26

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30 comments posted | 22 in the Living with ankylosing spondylitis group

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@CaryHutton I had trouble getting a referral and then getting an appointment. But I got there in the end and my doctor's wonderful with me. Sometimes it can be an uphill battle I'm afraid.

Are you satisfied with the care you've received for AS? https://www.carenity.co.uk/forum/other-discussions/living-with-ankylosing-spondylitis/dealing-with-doctors-for-as-4525 2022-03-04 10:53:26

Are you satisfied with the care you've received for AS?

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