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Myasthenia gravis: What do you think about your treatment?

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Myasthenia gravis: What do you think about your treatment?

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Courtney_J

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23/11/2021 at 17:49

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Courtney_J

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Last activity on 13/10/2022 at 16:47

Joined in 2020

1,280 comments posted | 17 in the Myasthenia Forum

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Hello everyone,

How are you today? emoticon cute

Let's talk about some of the treatments for myasthenia gravis (MG)!

Are you taking or receiving any treatments or medications for your MG? If so, what kind? What do you think about it? Is it helping?

Let's share together here!

Take care,
Courtney

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MaggieMG

23/03/2022 at 10:19

MaggieMG

Last activity on 23/03/2022 at 10:02

Joined in 2022

5 comments posted | 5 in the Myasthenia Forum

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@Courtney_J This is all still a bit new to me, and so far I've only been given pyridostigmine, so I'm not sure if I can give a review of sorts. I think it's helping my MG, but it makes me feel truly awful. I'm thinking about asking my doctor if there's something else I can take

Myasthenia gravis: What do you think about your treatment? https://www.carenity.co.uk/forum/myasthenia/treatments-for-myasthenia-gravis/myasthenia-gravis-what-do-you-think-about-your-treatment-4427 2022-03-23 10:19:12

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MaggieMG

Edited on 18/11/2022 at 16:13

@Courtney_J My symptoms came on rather suddenly, almost overnight. I thought at first I was having a stroke because you hear about the face drooping when that happens. Then I thought it was stress or fatigue but then when it didn't go away I knew it was something else. I went to my GP who told me to go to an eye doctor. Then there was some back and forth with the GP who finally ordered tests for me. It was awful waiting for the test results.

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Unregistered member

21/11/2016 at 15:19

I had a hip replacement 16 months ago due to osteoarthritis. I can honestly say it was the best decision I have ever made. Yes I was not looking forward to everything post op, but I am now 100% mobile and after not being able to walk any distances I now enjoy walking again and I've managed to lose 2.5 stones. Totally pain free and I've had lots of comments about how much happier I look - my face was obviously showing my pain. If you have any questions please ask!

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MaggieMG

Edited on 18/11/2022 at 16:13

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Unregistered member

21/11/2016 at 15:19

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