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Myasthenia gravis: What were your first symptoms?

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Courtney_J

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23/11/2021 at 17:47

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Courtney_J

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Last activity on 13/10/2022 at 16:47

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Hello everyone,

How are you today? emoticon cute

What were the first myasthenia gravis (MG) symptoms you experienced? Were they what prompted you to seek help?

Don't hesitate to share and discuss with us in the comments below!

Take care,
Courtney

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MaggieMG

23/03/2022 at 10:05

MaggieMG

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@Courtney_J Mine started with double vision and a droopy eyelid.

Myasthenia gravis: What were your first symptoms? https://www.carenity.co.uk/forum/myasthenia/living-with-myasthenia-gravis/myasthenia-gravis-what-were-your-first-symptoms-4423 2022-03-23 10:05:29

lilyofthevalley

17/05/2022 at 23:54

lilyofthevalley

Last activity on 03/07/2022 at 13:34

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I started having double vision as well, and it scared the .... out of me, to be honest. I made an appointment with my GP the next day, I was so afraid.

I heard most of people start having eye problems prior to diagnosis. Is there anyone here who had other symptoms in the beginning?

Myasthenia gravis: What were your first symptoms? https://www.carenity.co.uk/forum/myasthenia/living-with-myasthenia-gravis/myasthenia-gravis-what-were-your-first-symptoms-4423 2022-05-17 23:54:34

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MaggieMG

Edited on 18/11/2022 at 16:13

@Courtney_J My symptoms came on rather suddenly, almost overnight. I thought at first I was having a stroke because you hear about the face drooping when that happens. Then I thought it was stress or fatigue but then when it didn't go away I knew it was something else. I went to my GP who told me to go to an eye doctor. Then there was some back and forth with the GP who finally ordered tests for me. It was awful waiting for the test results.

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21/11/2016 at 15:19

I had a hip replacement 16 months ago due to osteoarthritis. I can honestly say it was the best decision I have ever made. Yes I was not looking forward to everything post op, but I am now 100% mobile and after not being able to walk any distances I now enjoy walking again and I've managed to lose 2.5 stones. Totally pain free and I've had lots of comments about how much happier I look - my face was obviously showing my pain. If you have any questions please ask!

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MaggieMG

Edited on 18/11/2022 at 16:13

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21/11/2016 at 15:19

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