- Home
- Share
- Forum
- Fibromyalgia Forum
- Living with fibromyalgia
- Living with Fibromyalgia during the Coronavirus Pandemic
Patients Fibromyalgia
Living with Fibromyalgia during the Coronavirus Pandemic
- 95 views
- 6 times supported
- 5 comments
All comments
pinsnneedles
Good advisor
pinsnneedles
Last activity on 05/04/2023 at 14:34
Joined in 2020
10 comments posted | 7 in the Fibromyalgia Forum
Rewards
-
Good Advisor
-
Contributor
-
Messenger
-
Explorer
@MissFibro Hi, I'm new to this site, but I'll comment anyway! I've been having more sleep problems since the lockdown started, and I'm guessing because I'm not getting out and about as I used to and I think it's playing games with my circadian rhythm. I'm comforted by the fact that primary fibro like I have doesn't affect our immune system so we're not particularly at a higher risk of complications than others, but staying at home is still hard on me mentally. I try to get out once a day for a walk and a brief stretch, but it's not enough so I've been feeling more achey and tired.
Has anyone had symptoms or know anyone who has gotten it?
Stay safe!
Lizzie
Good advisor
Lizzie
Last activity on 05/12/2024 at 19:46
Joined in 2014
5 comments posted | 3 in the Fibromyalgia Forum
Rewards
-
Good Advisor
-
Explorer
I really hoped that with being confined to home and walks in the local area, I would start to feel my pain lessening. Instead it has got worse and it's harder to fight off the depression. I think when I'm busy the adrenaline flows and carries me through.
I feel guilty about moaning though whilst so many people are going through hell with the corona virus.
Courtney_J
Community managerGood advisor
Courtney_J
Community manager
Last activity on 13/10/2022 at 16:47
Joined in 2020
1,280 comments posted | 32 in the Fibromyalgia Forum
10 of their responses were helpful to members
Rewards
-
Good Advisor
-
Contributor
-
Messenger
-
Committed
-
Explorer
-
Evaluator
@MissFibro @pinsnneedles @Lizzie Hello MissFibro, pinsnneedles and Lizzie, thank you for starting and participating in this discussion! It's so important that we stay connected as a community during these difficult times! I'm glad to hear that you all are doing well despite these stressful circumstances. Let me tag some members who may not have seen the discussion!
Hello members, I hope you don't mind that I've tagged you! How are you doing during the lockdown? Have you been taking any special precautions? What are you doing to take care of your symptoms or your mental health during this time?
@ZoanneSmith @Bebbabe53 @mazp43 @NickyS @sunny86 @Moodykitten @ellie763 @tracy0911 @Misspiggy
Take care,
Courtney
See the signature
Courtney_J, Community Manager, Carenity UK
mazp43
mazp43
Last activity on 27/05/2020 at 14:22
Joined in 2020
1 comment posted | 1 in the Fibromyalgia Forum
Rewards
-
Explorer
I am struggling with my mental health right now,I also have personality disorders and autism,
I talk to friends on the phone,social media,I play games on my phone ,have a word search app, do chores when I can,I have been sorting my clothes that don't fit anymore for the charity shop.
mazp43.
Bonyrose
Bonyrose
Last activity on 12/06/2021 at 13:36
Joined in 2016
4 comments posted | 1 in the Fibromyalgia Forum
Rewards
-
Explorer
Hi I'm a newbie here I have COPD pulmonary fibrosis fibromyalgia and arthritis I also have mental health problems borderline personality disorder and schizoaffective disorder. I'm in pain most of the time. Just needed to vent I'm feeling fed up
Give your opinion
Members are also commenting on...
Articles to discover...
23/10/2024 | Procedures & paperwork
06/09/2024 | Advice
04/09/2024 | Testimonial
Fibromyalgia: "If you fight against the illness, you'll never move forward."
11/05/2018 | Advice
18/10/2018 | Advice
18/06/2021 | News
Why do some still believe that fibromyalgia is a psychosomatic illness?
03/05/2019 | Testimonial
The testimonial of Natacha Waking up with fibromyalgia and non-disabling arthritis
Subscribe
You wish to be notified of new comments
Your subscription has been taken into account
MissFibro
Good advisor
MissFibro
Last activity on 10/07/2020 at 15:55
Joined in 2017
19 comments posted | 12 in the Fibromyalgia Forum
Rewards
Good Advisor
Contributor
Explorer
Hello all,
I noticed in my other group that there are a few discussions set up about the coronavirus, so I though maybe we could have one here.
I think we're all a bit in the same situation right now with the virus. It's not great fun being cooped up in doors, but my husband and I are doing our best to cope. I've been getting into some old unfinished embroidery projects that I had put aside years ago so that's keeping me busy, but it has gotten harder and harder over the years with the pins and needles in my hands. But I muddle through!
I hope you're all doing well and are managing your symptoms and medications! I was due for an appointment with my doctor this month but it's been cancelled as it's "non-essential". Let's all keep in touch here!
MissFibro xx