COVID vaccine and side effects for fibromyalgia patients

Hello @MariaB‍, thank you for opening this discussion! Let me tag some other members who can possibly share their experiences.

Hi everyone, how are you today?

Have you received the COVID-19 vaccine? Which vaccine did you get? Did you have any side effects? Have or will you get the booster vaccine?
@Janineholland‍ @Pebbles113‍ @MrsMelSerag78‍ @Mckkirby‍ @Sue1912‍ @Darren77‍ @Lauren06‍ @Khanie‍ @Tiger1924‍ @Chloe85‍ @Grisdale‍ @Rwthi1‍ @Robatkins‍ @Kjcherrybomb‍ @TracyF15‍ @Adshel1985‍ @DeeHarry05‍ @Wordieboo‍ 

Feel free to share with us here!

Take care,
Courtney

I had a bad reaction to the first Pfizer jab but not to the second - however thec drug I was on (interferon)  for ET clashed with the covid jabs and together they turned my immune system in on me - consequently I've had weeks of joint pain hair loss and exhaustion - I've been taken off interferon and put back on chemo - however I'm very very anxious about the booster which is booked for 5 days time - has anyone else had this experience?

Hello,

I have had all three.  The booster I had in one arm then at the same time flu in the other.  I would not recommend.  I work got the NHS (healthcare) and they wanted to get us all done ASAP.  Booster and flu were about 4 weeks ago.  I felt super unwell but couldn’t point my finger on it.  This was up and beyond my fibro and taking all my meds.  The nurse said I should have told her that I had fibro and to tell in the future.

I had covid in mar/apr  2020.  It’s terrible and that’s why me and my family are slowly having there’s.

Take care all ❤️ 

I have had 3 jabs - the first 2 we’re Astravenica the first one made me feel unwell for a couple of days, the third Pfizer which caused tenderness and under the weather for a few days and also had the flu jab at the same t

I did go ahead and have the booster with only a achy arm as after effects this time- I was warned by a friend not to have flu jab at same time as she too was very unwell after having them together so I staggered mine - I'm slowly getting back on track now I'm off interferon and back on chemo but was diagnosed with tachycardia 3 weeks ago so now on beta blockers too - there seems to be no reason for it as ECG showed my heart was healthy and blood pressure perfect-  cholesterol is also fine and I have no other things like thyroid problem or diabetes - so docs think it must be whatever was happening to my body that kicked it off- but my doc did say that being on Hydroxycarbamide for a number of years can sometimes damage the lungs so she's sending me for a chest xray - has anyone else who has been on it for years experienced damaged lungs? 

Had Astravenca in March 4 weeks later ended up in hospital with servere ischemic colitis bled out, this came out of the blue & still under investigation...had a dead arm when admitted which cleared up when in hospital. Also prior to been admitted my hands spelt funny and generally unwell...never had issues with bowel & not having 2nd dose or booster due to this happening...Consultants & Doctors are still not sure so I'm not nearly dying & spending 8 days in hospital ....good job I don't socialise very often

Sorry to hear that it must have been frightening - my hands and joints swelled up after my 2nd dose along with extreme exhaustion and a fast heart rate (so was put on beta  blockers)  and I've now been diagnosed with Lupus -  I've had no reaction from 3rd onen though and am feeling much better now -  I'm walking and gardening again and have alot more energy- I understand your reluctance though as being very ill is frightening - I guess there's so much they don't know as Covid is still very much an unknown 'enemy ' - I do hope you continue to get better