Home
Share
Forum
Epilepsy Forum
Living with epilepsy
Have you ever experienced memory problems because of your epilepsy?

Back

Patients Epilepsy

Have you ever experienced memory problems because of your epilepsy?

40 views
3 times supported
3 comments

Courtney_J

Community manager

08/02/2021 at 00:00

Good advisor

Courtney_J

Community manager

Last activity on 13/10/2022 at 16:47

Joined in 2020

1,280 comments posted | 3 in the Epilepsy Forum

10 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Messenger
Committed
Explorer
Evaluator

View profileView Add a friendAdd Write

Hello everyone,

How are you today? emoticon cute

I just wanted to drop in to share our latest article, in honour of International Epilepsy Day, which described the affect that epilepsy can have on memory: How does epilepsy affect memory?

And what about you? Have you ever experienced memory issues following your seizures? How do you cope with it?
@WillowsAcolyte‍ @Petcarer‍ @Dede1996‍ @Sammymay7642‍ @EPandMe‍ @Babushka‍ @crocket‍ @Cromy888‍ @Mrs.Parker‍ @Princess-Jaz‍ @llanarth‍ @Emmalouise77‍ @Ananya‍ @RavenRoses‍ @RichardJimPompaJr.‍ @Sharmeena‍ @Beth85‍

Feel free to share any experiences or advice here, we're all here to support one another!

Take care,
Courtney

All comments

EPandMe

17/03/2021 at 15:06

Good advisor

EPandMe

Last activity on 09/12/2022 at 12:20

Joined in 2020

10 comments posted | 8 in the Epilepsy Forum

Rewards

Good Advisor
Contributor
Messenger
Explorer

View profileView Add a friendAdd Write

@Courtney_J Oh yes, I'm very familiar with memory issues. Usually when I have a seizure I don't remember what I was doing before and it takes me a few minutes after regaining consciousness to realise what happened. The medicines I take also give me problems with short-term memory, it takes a bit for me to learn new things and it gave me some trouble at school on top of my seizures.

Have you ever experienced memory problems because of your epilepsy? https://www.carenity.co.uk/forum/epilepsy/living-with-epilepsy/have-you-ever-experienced-memory-problems-because-of-your-epilepsy-4013 2021-03-17 15:06:11

Sunshine5

14/06/2021 at 13:47

Good advisor

Sunshine5

Last activity on 17/11/2024 at 19:39

Joined in 2017

63 comments posted | 23 in the Epilepsy Forum

13 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Messenger
Committed
Explorer
Evaluator

View profileView Add a friendAdd Write

I have short term memory issues caused by left temporal lobe epilepsy. During a seizure, a can feel a strange sensation and this develops into secondary generalisation, affecting my entire brain for a minute. My seizures are better controlled after surgery and medication, but my ongoing difficulties to find work for these reasons has increased my anxiety and I am now chronically anxious.

I sometimes wish my life would end and go to heaven and with restrictions on social interactions due to CO-VID, I can no longer go anywhere other than the park.

See the signature

syusuf

lesmal

Ambassador

15/06/2021 at 10:41

Good advisor

lesmal

Ambassador

Last activity on 22/11/2024 at 17:10

Joined in 2018

1,420 comments posted | 78 in the Epilepsy Forum

53 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Messenger
Committed
Explorer
Evaluator

View profileView Add a friendAdd Write

Memory loss is a major issue for me after 47 years with epilepsy.

I've been on so many medications its unbelievable, just to try and find control through dosages and the right combination.

I've discovered that my long term memory is still good, but regret short term memory gets worse as I get older and when they keep changing my meds.

In the past, I had tonic clonic seizures and could not remember much after a seizure. Now I struggle with focal seizures, and am always conscious when they happen in clusters. I remember the episodes occurring still a few days afterwards, but have to write the date and time they happen to keep a proper record of how often.

I always carry a diary, notepad and pen in my handbag. This helps me write down tasks I have to complete today or tomorrow, as well as anything else I need to remember such as groceries to get and more!

I'm on a new medication now which I've only just started, so hate to think of how this will make my memory worse!

See the signature

Les

Members are also commenting on...

Articles to discover...

30/10/2024 | Advice

Epilepsy and pregnancy: What should you know before conception?

12/02/2024 | News

Epilepsy surgery: everything there is to know!

13/02/2023 | Advice

How to live well with epilepsy?

17/11/2022 | News

8 myths and misconceptions about epilepsy

11/02/2019 | Advice

Understanding epilepsy: what are the different types of seizures?

24/10/2018 | News

Epilepsy medicines pregabalin and gabapentin to be reclassified as class C drugs

27/08/2018 | News

Young Scot ‘crippled’ by epilepsy gets first dose of medicinal cannabis

20/09/2018 | News

Removing 'zombie' cells deters Alzheimer's in mice

Have you ever experienced memory problems because of your epilepsy?

All comments

Give your opinion

Members are also commenting on...

Articles to discover...

Medication fact sheets - patient opinions...