Patients Ankylosing spondylitis
Do you ever feel isolated with AS?
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GloriaG
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GloriaG
Last activity on 28/02/2023 at 00:50
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107 comments posted | 47 in the Ankylosing spondylitis Forum
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This is just my personal opinion but I am sure others could voice their concerns too...it must be so debilitating on top of the physical pain. Even though I am the owner/director of a clinic for the poor my staff seems to think I am OK and can go it alone, coz I have done for 8 years, nobody visits me coz they are too busy with "more serious" cases. With AS and in a wheelchair people tend to think it's just old age and cannot comprehend the other symptoms, the pain or the frustration and loneliness. If I called them they would probably come to visit but what can they do ? " Take your medication Mama, rest as much as you can Mama, watch a bit of TV Mama, we will drop in when we are not so busy Mama....!!! Why, I still have a very active brain and need conversation and some care. What do you all think. ??