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What has helped you most as a Parkinson’s caregiver?
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hjames56
hjames56
Last activity on 08/04/2025 at 20:43
Joined in 2015
1 comment posted | 1 in the Parkinson's disease Forum
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Mainly being part of a local support group.
Speech therapy and an open contact line provided through the PD nurse.
Equipment provided by the British Red Cross.
Not necessarily in that order.
See the signature
HJames
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Somya.P
Community managerGood advisor
Somya.P
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Last activity on 11/04/2025 at 19:38
Joined in 2023
577 comments posted | 3 in the Parkinson's disease Forum
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Hi everyone, hope you’re doing well today 😊
Caring for someone with a new Parkinson’s disease diagnosis can feel overwhelming at first, for both the person living with the condition and their loved ones. The early stages often come with a lot of uncertainty, questions, and emotional ups and downs.
If you’ve been a caregiver or supported someone with Parkinson’s, your experience could be incredibly helpful to others who are just beginning this journey.
❓ What advice would you give to someone new to caregiving?
❓ What do you wish someone had told you in the beginning?
❓ What helped you most, emotionally, practically, or medically, in the early stages?
@princess1 @naresh @katty1 @Seagullsoup @Joykay @CoCo1300 @Sanders74 @WinterSky @JohnGrehan @hjames56 @Flanagan1 @Art72kl @EKSMUM @Bogailey @Ninjamum @wangell @Dizzydee @jjan3t @Gercro @caseyk @Troublesome @galaxygirl @caroleste @Bob54321 @EmaCov @tazim1 @Kazzy10 @aniangel @Haynesmother @Mumofsix @RosieC @Brinola79 @Wain25may @JFouracres @Tobydog @Mollyb @Pesty535 @Tsiomas @Barbarapotter @joannarose @Joelle @Snowey @Lorrainegaughan @Lizzyp @Josiej @Jani54 @alisonjackson65 @Holdenrose22 @Jayne40 @carer13 @runwell @franticwife @Formum123 @PastorPaul @EmmyJay @MalcolmW @jim_here @blanky @Paddie23 @PDCarer @Fortis @rooneytoomey @Peter888 @CarlGover @jomatt @husbandscarer @MullaghRua2017 @Alisonpleics @Suep123 @Laineyash @traceycuth @Gailwilk @Tbk71r @Cazbell @Carol56 @Sal1105 @HelenJane369 @HelsBels77
Let’s support each other through shared experience.
Take care,
Somya from the Carenity Team 🌼