Home
Share
Forum
Non-alcoholic fatty liver disease and NASH Forum
Living with non-alcoholic fatty liver disease (NAFLD) and NASH
NASH: How was your diagnosis experience? Did you get a plan of care? Prognosis?

Back

Patients Non-alcoholic fatty liver disease and NASH

NASH: How was your diagnosis experience? Did you get a plan of care? Prognosis?

372 views
25 times supported
19 comments

JosephineO

Community manager

Edited on 22/07/2019 at 11:36

Good advisor

JosephineO

Community manager

Last activity on 15/07/2024 at 09:21

Joined in 2018

989 comments posted | 7 in the Non-alcoholic fatty liver disease and NASH Forum

6 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Committed
Explorer
Evaluator
Friend

View profileView Add a friendAdd Write

One of the main complaints of those diagnosed with Nonalcoholic fatty liver disease is that the doctor spent little to no time explaining to them their condition, the prognosis, and the plan of care at the appointment where they received their diagnosis or where they were told the findings of the medical studies revealing nonalcoholic fatty liver disease.

What has been your experience? Did you have a similar experience or did your doctor explain to you the condition? The plan of care?

Share your experience with others.

All comments

Go to the last comment

JosephineO

Community manager

09/07/2019 at 11:03

Good advisor

JosephineO

Community manager

Last activity on 15/07/2024 at 09:21

Joined in 2018

989 comments posted | 7 in the Non-alcoholic fatty liver disease and NASH Forum

6 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Committed
Explorer
Evaluator
Friend

View profileView Add a friendAdd Write

Hello,

Have you seen this discussion? Have you experienced similar issues? What was your experience of diagnosis? :)

@Groovychick‍ @Liam2863‍ @julania‍ @bonnie_gillies‍ @Willsterino‍ @Shelly_74‍ @Evamarie‍ @RoseofSharon‍ @Karenlg‍ @POORBOY‍ @Jeannieb12‍ @melody12‍ @StumpyDavies‍ @kaz40uk‍ @Southy1‍ @gwen300‍ @wendychick1‍ @Shazjaz‍ @Cazham30‍ @louj1989‍ @jmj1980‍ @Scottishlass1‍ @learidd‍ @Pammypoppins‍ @CharlieBbz‍ @mrshen‍

See the signature

Josephine, Community Manager

NASH: How was your diagnosis experience? Did you get a plan of care? Prognosis? https://www.carenity.co.uk/forum/nonalcoholic-fatty-liver-disease-and-nash/living-with-nonalcoholic-steatohepatitis-nash/nash-how-was-your-diagnosis-experience-did-you-get-a-plan-of-care-prognosis-2887 2019-07-09 11:03:29

Hello78

15/07/2019 at 11:48

Good advisor

Hello78

Last activity on 26/06/2020 at 13:00

Joined in 2014

14 comments posted | 1 in the Non-alcoholic fatty liver disease and NASH Forum

Rewards

Good Advisor
Contributor
Messenger
Explorer

View profileView Add a friendAdd Write

My doctor did explain it to me but I was a bit shocked and found that I learned a lot more on online. I felt better once I could gain knowledge myself and then go back to ask the doctor about it afterwards.

I follow diet plans from more online sources than my doctor, sometimes she seems too rushed to be able to spend quality time discussing the future.

Liam2863

25/07/2019 at 13:51

Good advisor

Liam2863

Last activity on 06/07/2021 at 01:08

Joined in 2018

70 comments posted | 10 in the Non-alcoholic fatty liver disease and NASH Forum

Rewards

Good Advisor
Contributor
Messenger
Committed
Explorer
Evaluator

View profileView Add a friendAdd Write

After Ultrasound, MRI with Contrast, Fibroscan and then a Liver Biopsy I was finally told I had Non Alcoholic Steato-hepatitis (NASH). My spouse was with me at the Consultation with the Liver Specialist and he was to the point and told me to get my Blood Sugars under control (being a Diabetic), loose some weight and eat plenty of Vegetables. Or it won't be too long before I end up on the Liver Transplant List!!! = Shocked is not the word I would say to describe how I felt at that time.

Lillymaddy

04/11/2019 at 13:20

Lillymaddy

Last activity on 24/11/2024 at 16:07

Joined in 2019

1 comment posted | 1 in the Non-alcoholic fatty liver disease and NASH Forum

Rewards

Explorer

View profileView Add a friendAdd Write

I was diagnosed by fibroscan Stage2 advanced. over 6 weeks ago. I was given no dietary advice or prognosis.
feel it’s a case of diet lose weight or die! That’s what it feels like

Michael_B

Community manager

19/11/2019 at 09:52

Good advisor

Michael_B

Community manager

Last activity on 25/08/2020 at 17:48

Joined in 2019

204 comments posted | 1 in the Non-alcoholic fatty liver disease and NASH Forum

1 of their responses was helpful to members

Rewards

Good Advisor
Contributor
Explorer
Friend

View profileView Add a friendAdd Write

Hello @Lillymaddy‍ ,

Thanks for your message and welcome!

Hello Members,

I hope you don't mind me tagging you, but I was wondering if any of you could share your experiences with dietary advice or your prognosis regarding NASH? How are you doing now?

@Rocketdog‍ @Photocaz‍ @Tracyno1‍ ‍ @Susdon‍ @Liam2863‍ @Hello78‍ @Maggiecampbell‍ @Suz456‍ @Tortoise1330‍

Thanks everyone,

Michael

See the signature

Michael_B, Community Manager, Carenity UK

Liam2863

Edited on 20/11/2019 at 00:53

Good advisor

Liam2863

Last activity on 06/07/2021 at 01:08

Joined in 2018

70 comments posted | 10 in the Non-alcoholic fatty liver disease and NASH Forum

Rewards

Good Advisor
Contributor
Messenger
Committed
Explorer
Evaluator

View profileView Add a friendAdd Write

Thanks @Michael_B‍

Hello @Lillymaddy‍ - What number was your Fibroscan result?

If I can help in any way?

William emoticon bashful

Ann63lw

03/12/2019 at 22:39

Ann63lw

Last activity on 19/12/2020 at 13:48

Joined in 2019

2 comments posted | 2 in the Non-alcoholic fatty liver disease and NASH Forum

Rewards

Explorer

View profileView Add a friendAdd Write

I was told in 2016 I had non alcoholic fatty liver disease. I was told to do nothing it was not that bad. I have now had I show in my blood test and have been advised to loss weight and change diet. I have an appointment on 23rd dec with nutritionist.

Vicky1966

15/12/2019 at 23:00

Vicky1966

Last activity on 15/12/2019 at 22:52

Joined in 2019

1 comment posted | 1 in the Non-alcoholic fatty liver disease and NASH Forum

Rewards

Explorer

View profileView Add a friendAdd Write

@Ann63lw Hi I have just had diagnosis over the phone by doctor after an ultrasound. It was a wake up call so I've been eating alot more healthy foods and walking 2 miles a day. Lost 10lbs already. Just 4 stone to go.....

Ann63lw

16/12/2019 at 08:53

Ann63lw

Last activity on 19/12/2020 at 13:48

Joined in 2019

2 comments posted | 2 in the Non-alcoholic fatty liver disease and NASH Forum

Rewards

Explorer

View profileView Add a friendAdd Write

Wow, that is great can you share what you eat please. I would be grateful off any advice I have stopped eating fatty foods and no butter, very little milk and lots of vegetables. Lost 2lb last week. Any advice would be welcome.

vivi1975

05/02/2020 at 11:38

Good advisor

vivi1975

Last activity on 08/09/2020 at 12:37

Joined in 2020

6 comments posted | 5 in the Non-alcoholic fatty liver disease and NASH Forum

Rewards

Good Advisor
Contributor
Explorer

View profileView Add a friendAdd Write

Hello, I'm new here and I'm in this situation. My GP hasn't explained the disease to me, even though I have asked questions. He simply told me to stop eating fatty foods and exercise more, not how to deal with the pain (other than anti-inflammatories) or about any alternative medicine.

If anyone knows about natural remedies or diets that can help, please let me know. Thank you in advance.

Members are also commenting on...

Articles to discover...

08/06/2024 | Advice

World NASH Day: How can NASH and NAFLD be prevented?

26/12/2022 | Nutrition

Maintaining a healthy diet when living with Non-Alcoholic Steatohepatitis (NASH)

10/06/2022 | News

NAFLD: everything there is to know about fatty liver disease

01/06/2022 | Testimonial

NASH: “If I can help even a few people it will all be worth it”

06/06/2018 | Advice

How are liver function and cholesterol production linked?

14/03/2018 | Nutrition

Cutting back on carbs could help treat fatty liver disease

13/12/2018 | Testimonial

Bariatric Surgery & Obesity: Psychological Follow-Up, Cost And Effectiveness

17/12/2018 | Testimonial

Encountering many Diagnosis Errors Before Being Diagnosed with Chronic Asthma and NASH

NASH: How was your diagnosis experience? Did you get a plan of care? Prognosis?

All comments

Give your opinion

What do you think about the Carenity Forum and community?

What are your expectations from Carenity and what would you like to see in the future?

How were you diagnosed?

Members are also commenting on...

Articles to discover...