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Living with non-alcoholic fatty liver disease (NAFLD) and NASH
Where do you find support for NASH?

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Where do you find support for NASH?

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CptJanuary

20/05/2020 at 18:01

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CptJanuary

Last activity on 15/07/2020 at 18:21

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Hello, I'm new on this forum. I hope I'm doing this correctly. I've recently been diagnosed and I'm not able to properly wrap my mind around this disease. I feel like it came out of nowhere and I don't know what to do with it. Where do you all find support for this? Are there groups out there that I don't know about or organisations? Or do you just talk to your family and friends about it? I don't know where to turn.

Any advice is appreciated.

Thank you

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Courtney_J

Community manager

20/05/2020 at 18:20

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Courtney_J

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Last activity on 13/10/2022 at 16:47

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1,280 comments posted | 11 in the Non-alcoholic fatty liver disease and NASH Forum

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@CptJanuary Hello CptJanuary, thank you for starting this discussion. There are many ways a person may find support when dealing with a chronic condition, such as nonalcoholic fatty liver disease (NAFLD) and nonalcoholic steatohepatitis (NASH). Each person experiences different symptoms and complications of NAFLD and NASH at varying extremes and each person deals with these symptoms and complications uniquely.

Some people find support through family, others through online communities - such as Carenity, others may find support through local church groups, etc.

Let me tag some other members who may be able to share some advice or resources with you.

Hello members, I hope you are well! How do you find support for your NASH? Are there times when dealing with the condition where having that support is more imperative? Feel free to share here!

@Loveable123‍ @Janetm‍ @Lea1964‍ @daubney2‍ @MaudeLynne‍ @Jendchris‍ @LesleyWhy10101‍ @rinjama‍ @Glindawitch13‍ @Sherry01‍ @Mohan22565‍ @Angeeba‍ @artwilde‍ @KT15Leon‍ @Jojostarkey‍ @Nickyh13‍ @Fieldkat‍

Take care,

Courtney

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Courtney_J, Community Manager, Carenity UK

Where do you find support for NASH? https://www.carenity.co.uk/forum/nonalcoholic-fatty-liver-disease-and-nash/living-with-nonalcoholic-steatohepatitis-nash/finding-support-for-nash-3383 2020-05-20 18:20:07

KT15Leon

20/05/2020 at 19:44

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KT15Leon

Last activity on 10/11/2024 at 17:54

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2 comments posted | 1 in the Non-alcoholic fatty liver disease and NASH Forum

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I t came as a bit of a shock as I'm sure you all can understand. I have been dealing with other auto immune disorders for years. I am supported by my family, my rheumatologist and my health centre. I was not expecting this at all

katlover78

25/05/2020 at 15:34

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katlover78

Last activity on 18/12/2023 at 04:40

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10 comments posted | 5 in the Non-alcoholic fatty liver disease and NASH Forum

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@CptJanuary I was able to find a support group in my area through the British Liver Trust website and that helped. And when it's not convenient for me I of course have Carenity or other Facebook groups.

vivi1975

26/05/2020 at 12:31

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vivi1975

Last activity on 08/09/2020 at 12:37

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6 comments posted | 5 in the Non-alcoholic fatty liver disease and NASH Forum

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@CptJanuary I understand completely. I was in shock too. At first it was hard to talk about it with my family or husband because they didn't know anything about it (neither did I for that matter), but now with time as I've learned a bit more and I've had it for a while I can talk to them about it. And my health centre is also a great resource as well, the staff are all so kind.

Gillianno

28/05/2020 at 09:12

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Gillianno

Last activity on 13/05/2021 at 08:27

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4 comments posted | 4 in the Non-alcoholic fatty liver disease and NASH Forum

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Hi this is the first time for me and I feel shocked as I was told of my diagnosis a while ago did not realise this was such a chronic condition. Was more concerned about other health problems. Any advice would be appreciated

Mohan22565

05/06/2020 at 01:46

Mohan22565

Last activity on 27/03/2022 at 05:09

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@Gillianno this is me exactly, now I’m not sure whether to be worried or not!...xx

Gillianno

05/06/2020 at 08:29

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Gillianno

Last activity on 13/05/2021 at 08:27

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Once we can back to doctors I'm going to get myself checked again and push for help

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