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- Bowel urgency, incontinence and MS: Have you experienced this?
Bowel urgency, incontinence and MS: Have you experienced this?
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Courtney_J
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Courtney_J
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Last activity on 13/10/2022 at 16:47
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1,280 comments posted | 58 in the Living with multiple sclerosis group
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@JayneMason Hello JayneMason, thank you for opening this discussion and sharing what you've been dealing with. How did your appointment go?
Hello members, how are you today? Have you ever experienced bowel urgency and/or incontinence in parallel with your MS? How did you handle it? Do you know if it was caused by MS itself or the treatments?
@Bern50 @Zombieapplebaby @Hezza21 @Meggie333 @Oliviac09 @182614 @Diva360 @DavidMacRae @vonnywonkie @Carol50 @Granmarshall @Barbershop19 @NicLiv @ANGIE. @Essben @Scottydog
Feel free to share your thoughts and experiences here, we're all here to help and support one another!
Take care,
Courtney
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Courtney_J, Community Manager, Carenity UK
Miss.MS
Miss.MS
Last activity on 29/10/2020 at 15:41
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6 comments posted | 6 in the Living with multiple sclerosis group
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@JayneMason Yes I've started having some bowel issues as well. My specialist said it was the medicines I'm taking. Maybe it's that for you as well? How was your appointment?
LindaBlacker
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LindaBlacker
Last activity on 12/05/2024 at 21:36
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180 comments posted | 71 in the Living with multiple sclerosis group
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I once had an accident wished I could vanish felt so embarrassed. Now I take an imodium before I leave my home. Better to be safe than sorry.
Susiek
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Susiek
Last activity on 17/11/2024 at 18:28
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These stories are very familiar i too don't get much notice when i need to go i have increased my fluid intake which has helped but my carers now know the routine and are good because sometimes i get very frustrated when i want to go but can't i try not to focus on my bowels as i want to be in control not them (sometimes it's hard) keep well everybody 🌈
LindaBlacker
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LindaBlacker
Last activity on 12/05/2024 at 21:36
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180 comments posted | 71 in the Living with multiple sclerosis group
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It's difficult focusing on my bowel when it's totally unpredictable. If I take medication to slow down my bowel when I go out. My bowel is sluggish for days. I'd love to hear your views on this matter. It's difficult being in a new relationship with this problem. Even though my fiancee has irritable bowel. We end up laughing about the situation as theres nothing we can do
KeithDB
KeithDB
Last activity on 13/05/2021 at 07:45
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I've had a couple of embarrassing moments. Part of my plan is always to know where my emergency loo is. I had a minor panic when I had to board a light aircraft for part of a particular journey - no loos there!
Pretty sure it is MS related.
Courtney_J
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Courtney_J
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Last activity on 13/10/2022 at 16:47
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Hello everyone, thank you for creating and participating in this discussion!
@JayneMason How are you feeling? Were you able to speak with your neurologist? Were they able to provide any clarity on this for you?
Take care,
Courtney
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Courtney_J, Community Manager, Carenity UK
LindaBlacker
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LindaBlacker
Last activity on 12/05/2024 at 21:36
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I have secondary ms yes incontinence is part and parcel of ms. I've had an accident myself luckily for me I got home just in time. Merry xmas happy 2021
LindaBlacker
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LindaBlacker
Last activity on 12/05/2024 at 21:36
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Well hello everyone happy new year. I find ms unpredictable. Alas it's like most parts of my life. I take the ups with the downs quite well. Having had ms forty years helps. To me ms is normal. I've had ms more of my life than not. Hopefully this vaccine wont be too long. Weve enough to worry about. I'm a fighter now it works for me. No point getting down. Take care God Bless you all
LindaBlacker
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LindaBlacker
Last activity on 12/05/2024 at 21:36
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180 comments posted | 71 in the Living with multiple sclerosis group
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I bought a key for most toilets I can use when the loos are closed feel safer as long as I can locate the loos before I set off.
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JayneMason
JayneMason
Last activity on 28/01/2023 at 18:55
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Unsure of how things will go
Sometimes I think it's better to talk to fellow Ms'ers about things will it be possible to get advice on incontinence of the bowels
This is so embarrassing , I get the urge/feeling I want to open my bowels and then I can't control them
Any help please????
Appreciated VERY much ThanksXx p