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How does NET impact your everyday life?
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Courtney_J
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Courtney_J
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Last activity on 13/10/2022 at 16:47
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1,280 comments posted | 3 in the Neuroendocrine tumour Forum
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Hello everyone,
How are you doing? Have you seen this discussion?
What impact have neuroendocrine tumours had on your daily life? Have you had to change aspects of your daily life or routine because of it? Has it had an impact on your personal or professional relationships? What do you think?
@MariaZerafa @Louwolf73 @Chris63 @Deb150771 @Angela79 @Sarahchambers87 @chrisrowkins @Laurenbates1 @angel27d @louelle @Danidntdance @CressidaRobson @YvonneLaz @Gillian_daly @Sted1910 @bryonyb
Take care,
Courtney
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Courtney_J, Community Manager, Carenity UK
Caesar
Caesar
Last activity on 23/07/2020 at 18:20
Joined in 2016
3 comments posted | 3 in the Neuroendocrine tumour Forum
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@Courtney_J I had to retire early because of my diagnosis. The symptoms were just too much for me and I couldn't work with them. Between the general fatigue, the cramps and diarrhoea I couldn't go into the office. It makes it hard for me to do basic chores like cooking and cleaning, so unfortunately a lot of that falls on my wonderful wife. I think it's hard on her because she worries about me and I feel guilty for putting her through this. The both of us decided to see a therapist individually to talk about it and try to cope with it all and it's been a help.
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Melanieann
Melanieann
Last activity on 30/09/2024 at 09:29
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Patient, Neuroendocrine tumour since 2024
3 comments posted | 2 in the Neuroendocrine tumour Forum
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@Caesar I’ve just been diagnosed last week, been off work a while though
I struggle with fatigue everyday, lack of appetite, can’t see myself going back to work
Somya.P
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Somya.P
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Last activity on 20/12/2024 at 21:29
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Hello @Melanieann,
Thank you for sharing. Being newly diagnosed and dealing with these symptoms must feel overwhelming. Taking time to focus on what your body needs is so important, especially as you’re navigating this new reality. Have you found any small ways to manage your energy or support yourself day-to-day?
Take care,
Somya from the Carenity Team 🌼
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Somya
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Margarita_k
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How do you estimate the impact that the NET has on your daily life (social, professional...)?
Your experience and your opinion could help others better cope with the condition.