Your diagnosis

My mum was for years with diarrhea, every doctor said irritable colon. She was diagnosed when a doctor palpatedthe liver, you can imagine it was something big by that time. She got flushing as well,(got red skin and hot when she ate or drunk) doctors didn t know what was it, until she got to the Oncologo. it is possible to detect testing the hormones in the urine.

Thank you @luli31 for your feedback, and sorry to hear about your mother's diagnosis!

I had neuro endocrine tumour had a wipples procedure 7 years ago I am now worried it's back as I can't use my left arm pain is 10/10 X-ray shows nothing I'm worried sick it's in my bones

how are thing now Julie?sorry to hear about your mother

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thank you

I was experiencing extremely painful headaches. I naively put it down to work related stress so nearly a year. I put on 3  stone in weight but went to a doctor when my periods stopped. He quickly referred me to an endocrine specialist. 

After an MRI scan, they confirmed a Pituitary Tumour(macroadema). Blood tests also confirmed elevated prolactin & growth hormone production

I was in turkey on holiday and got food poisoning as did few from our hotel I woke up in a private hospital and had been operated on I was told they had removed my appendix but I had already had ruptured appendix age 16 when I finally got back to UK I was sent for scans to see if a kidney had been taken as it had happened before to someone in Turkey to cut it short they discovered I had a neuro endocrine tumour on the head of my deodeum it had spread to my lymph nodes and 17 where removed in a wipples procedure I was 46 this usually happens to older people anyway I suffered terribly with pain since the wipples and they discovered my bowel and stomach hernias I had to have the wipples re opened to put a large mesh repair as my abdominal wall had collapsed I can not eat now without taking octreotide injections as I get dumping syndrome and Creon to digest my food I have terrible nerve damage and suffer great pain because of the operations scar I have diabetes and fibromyalgia also degenerative spine disease irritable bowel syndrome