Symptoms of NET

My husband was diagnosed with insulinoma, it's a type of pancreatic neurondocrine cancer. Insulinoma causes low blood glucose level, so he had the signs of hypoglycemia - light headedness, sweating, etc. that we didn't really consider as symptoms before the doctor told us that these may be the signs of a disease. It was the day that my husband fainted that we understood that there was something serious and we went to our GP.

hi there my symptoms are pain in the abdomen, diarrea and vomiting.ialso get headaches

Hi, I was diagnosed with a carcinoid tumour in the small intestine in 2009, which along with nine nodes was removed successfully.  Apparently the tumour was the size of my surgeons clenched fist - he is a big man with big hands!

My symptoms really started with me feeling very bloated and being terribly sick, this went on for six years until detected by a routine colonoscopy.  It got to a point where everything I ate just came straight back and I was not doing any poos, but my doctor kept insisting I did not have a blockage.  No one that I saw ever suggested or thought for one minute that I had cancer, even me or my son who works on oncology.  Pleased to say I am now fully recovered.

My carcinoid was found in my appendix last year since removing I suffer still with diarrhoea, palpation,  fatigue, I'm constantly bloated and all food seems to upset my tummy I have lots more symptoms but won't list them all.

I've had so many stays in hospital this year and getting no further forward.

I'm now being seen at a London hospital who specialise in bowels etc.

I worry that there could be another tumour somewhere 

So fingers crossed 

I was very recently diagnosed with a neuroendocrine tumour it was attached to my bowel and has spread to the lymph nodes on the vena cava. The tumour (the same size of my 6yr olds head) was successfully removed along with one lymph node, and 400mm of bowel but apparently it would be too difficult to remove the other affected lymph nodes so last wk I started chemotherapy. Oncologist told me the average life expectancy was just one yr......