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Wondering how MS will affect me today

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Gilda

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Edited on 12/08/2016 at 11:35

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Gilda

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Last activity on 03/02/2023 at 15:26

Joined in 2015

710 comments posted | 45 in the Multiple sclerosis Forum

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Waking up in the morning and facing the world brings a sense of wonder. Not in the sense of awe, just in wondering how MS will affect me today.

Is it a good day or a bad day? What will it bring?

Like most people, I guess, one of the first things to do is get out of bed and use the bathroom. Of course, among the symptoms that can be experienced with MS is an increased frequency in the need to urinate.

So I quickly evaluate how urgent is my need to relieve my bladder. Realistically, will I be able to reach the bathroom in time?

If I think I can and, once sitting up, if that confidence continues, it is time to go for it. I have to say, most times that confidence is not misplaced. But if I believe my need is too urgent or I am too unsteady to make it, I resort to using the urine bottle I keep by the bed to cope with such a situation.

Actually, not so long ago, I used to wake up at least twice during the night for the same purpose. That was certainly the case when I lived in the UK, and again when I first moved Spain. But now, nearly nine months later, life is easier in that respect. I can now sleep through the night, and that means I am more rested in the morning.

Being more rested at night means that I am better equipped when that dreaded fatigue hits, as is often the case.

Waterworks is one way MS affects me

Turning back to the “waterworks,” the change is also affecting my daytime life. My need to use the bathroom every two hours or so is diminishing; today, I can usually go for four hours or even longer. And the sense of urgency, while undoubtedly still having an effect, seems to be lessening.

At one time, things were so bad that I was wearing an incontinence pad all the time, even at home. Nowadays, I only wear one when I go out – to avoid any unfortunate embarrassment. However, the pads normally get removed without being used.

The other day, Lisa and I went out for a meal with another couple. The restaurant was a little drive away and, even though I didn’t use the bathroom before we left and we had drinks with the meal, I didn’t feel the urge again for some time. Yes, despite the drinks, I didn’t use a bathroom for about five hours. I wasn’t wearing a pad, either!

So what has changed to cause this improvement? Not a lot, really.

First, we moved from the mainly grey skies and rain of the U.K. to the almost constant sunshine we enjoy in the south of Spain, and with sunshine comes higher temperatures. Secondly, in Britain, I was prescribed 2.5 mg of a medication called oxybutynin to be taken twice a day. Here, my prescription has not changed but the smallest tablet available is 5 mg.

Now, I know I am supposed to break the tablet in two, taking half in the morning and half at night, but I don’t. Even though the tablet has a clear line to help split it, I don’t do so. Instead, I take one 5 mg tablet in the evening and that is it.

Could either of those changes, or the combination of them, be causing the improvement I’m experiencing? I have no idea, but long may it continue.

About the author:
Ian Frank

Ian Franks enjoyed a successful career as a journalist, from reporter to editor, in the print media; during which he gained a Journalist of the Year award in his native UK. He was diagnosed with MS in 2002 but continued working until mobility problems forced him to retire early in late 2006. He now lives in the south of Spain and uses his skills to write his own flourishing specialist Health & Disability blog at www.50shadesofsun.com. Besides MS, Ian is also able to write about both epilepsy and cardiovascular matters from a patient’s perspective and is a keen advocate on mobility and accessibility issues.

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Unregistered member

12/08/2016 at 11:35

Sorry not been around much , it's been a month of ms being a hinderence . My mother has been diagnosed with dementia , she had a blood clot which led to a mini stroke . So ms has been around but life has ruled what has been going on

Wondering how MS will affect me today https://www.carenity.co.uk/forum/multiple-sclerosis/my-library-multiple-sclerosis/wondering-how-ms-will-affect-me-today-1269 2016-08-12 11:35:45

Unregistered member

30/12/2016 at 09:57

Interesting post. I think moving to the sunshine of Spain would probably make most of us feel somewhat better ?

I can't complain on that front though really. I live in beautiful Cornwall. We may not have Spanish weather but you can't drive more than a few miles without being greeted by stunning views of the sea.

Wondering how MS will affect me today https://www.carenity.co.uk/forum/multiple-sclerosis/my-library-multiple-sclerosis/wondering-how-ms-will-affect-me-today-1269 2016-12-30 09:57:23

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