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Patients Idiopathic inflammatory myopathy
What is your idiopathic inflammatory myopathy (IIM) story? Let's share!
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Courtney_J
Community managerGood advisor
Courtney_J
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Last activity on 13/10/2022 at 16:47
Joined in 2020
1,280 comments posted | 6 in the Idiopathic inflammatory myopathy Forum
10 of their responses were helpful to members
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Hello all,
How are you doing? Have you seen our IIM community here? 😊
Don't hesitate to share your story, your questions, concerns, or anything else about life with idiopathic inflammatory myopathy here! @exdriver@CaroleR@imogentesta@nkauser@CaroleR@Helenh69@EstherFitzgeraldmother@Micasey@Dusty961@Lorat77
Take care,
Courtney
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Courtney_J, Community Manager, Carenity UK
IrisIIM
IrisIIM
Last activity on 23/03/2022 at 14:41
Joined in 2022
5 comments posted | 5 in the Idiopathic inflammatory myopathy Forum
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@Courtney_J I went to my GP at the start for the skin rash I was having, and then after talking about the weakness I'd been having, that got the tests going. We initially thought it was a sort of arthritis but when it all started pointing towards the muscles and then came back as dermatomyositis I was on the floor!
Looking forward to talking with others and seeing what others' experience has been like! 😊
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Courtney_J
Community managerGood advisor
Courtney_J
Community manager
Last activity on 13/10/2022 at 16:47
Joined in 2020
1,280 comments posted | 6 in the Idiopathic inflammatory myopathy Forum
10 of their responses were helpful to members
Rewards
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Hello everyone,
Welcome to the idiopathic inflammatory myopathy (IIM) discussion group on Carenity!
This space is dedicated to you to share your questions, stories, fears, advice, and much more with other members!
As you know, the diagnosis of a chronic illness, especially if it's rare, can be a life-changing experience. So let's talk about it together!
What was your diagnosis experience like? How long did it take you to get your diagnosis? What symptoms did you have that made you feel like something was wrong? How are you doing today?
Feel free to share your story here!
Take care,
Courtney