- Home
- Share
- Forum
- Idiopathic inflammatory myopathy Forum
- Living with idiopathic inflammatory myopathy
- What is your idiopathic inflammatory myopathy (IIM) story? Let's share!
Patients Idiopathic inflammatory myopathy
What is your idiopathic inflammatory myopathy (IIM) story? Let's share!
- 23 views
- 0 support
- 2 comments
All comments
Courtney_J
Community managerGood advisor
Courtney_J
Community manager
Last activity on 13/10/2022 at 16:47
Joined in 2020
1,280 comments posted | 6 in the Idiopathic inflammatory myopathy Forum
10 of their responses were helpful to members
Rewards
-
Good Advisor
-
Contributor
-
Messenger
-
Committed
-
Explorer
-
Evaluator
Hello all,
How are you doing? Have you seen our IIM community here? 😊
Don't hesitate to share your story, your questions, concerns, or anything else about life with idiopathic inflammatory myopathy here! @exdriver@CaroleR@imogentesta@nkauser@CaroleR@Helenh69@EstherFitzgeraldmother@Micasey@Dusty961@Lorat77
Take care,
Courtney
See the signature
Courtney_J, Community Manager, Carenity UK
IrisIIM
IrisIIM
Last activity on 23/03/2022 at 14:41
Joined in 2022
5 comments posted | 5 in the Idiopathic inflammatory myopathy Forum
Rewards
-
Explorer
@Courtney_J I went to my GP at the start for the skin rash I was having, and then after talking about the weakness I'd been having, that got the tests going. We initially thought it was a sort of arthritis but when it all started pointing towards the muscles and then came back as dermatomyositis I was on the floor!
Looking forward to talking with others and seeing what others' experience has been like! 😊
Give your opinion
Members are also commenting on...
Living with Infection - Inflammation - Immune system diseases
Biotherapy and COVID-19: Has the virus had an impact on your treatment?
Articles to discover...
21/12/2024 | Nutrition
Anti-fatigue foods: How can you boost your energy naturally?
29/11/2024 | Nutrition
25/11/2024 | News
23/11/2024 | News
Subscribe
You wish to be notified of new comments
Your subscription has been taken into account
Courtney_J
Community managerGood advisor
Courtney_J
Community manager
Last activity on 13/10/2022 at 16:47
Joined in 2020
1,280 comments posted | 6 in the Idiopathic inflammatory myopathy Forum
10 of their responses were helpful to members
Rewards
Good Advisor
Contributor
Messenger
Committed
Explorer
Evaluator
Hello everyone,
Welcome to the idiopathic inflammatory myopathy (IIM) discussion group on Carenity!
This space is dedicated to you to share your questions, stories, fears, advice, and much more with other members!
As you know, the diagnosis of a chronic illness, especially if it's rare, can be a life-changing experience. So let's talk about it together!
What was your diagnosis experience like? How long did it take you to get your diagnosis? What symptoms did you have that made you feel like something was wrong? How are you doing today?
Feel free to share your story here!
Take care,
Courtney