Patients Idiopathic inflammatory myopathy

How did you handle your IIM diagnosis?

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Courtney_J

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03/12/2021 at 12:22

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Courtney_J

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Last activity on 13/10/2022 at 16:47

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1,280 comments posted | 6 in the Idiopathic inflammatory myopathy Forum

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Hi everyone,

How are you doing? emoticon cute

How did you feel when you were diagnosed with IIM? Were you given all the information you needed to understand it and its treatments? What about support?

Feel free to share your thoughts and experiences with us here!

Take care,
Courtney

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IrisIIM

23/03/2022 at 15:00

IrisIIM

Last activity on 23/03/2022 at 14:41

Joined in 2022

5 comments posted | 5 in the Idiopathic inflammatory myopathy Forum

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@Courtney_J It was all really shocking and unexpected for me. It's been overwhelming, there's really not much information out there about it beyond the very medical sites and I'm not really sure what the way forward is with this disease. If my doctor wasn't familiar with it, how am I supposed to be?

How did you handle your IIM diagnosis? https://www.carenity.co.uk/forum/idiopathic-inflammatory-myopathy/living-with-idiopathic-inflammatory-myopathy/how-did-you-handle-your-iim-diagnosis-4455 2022-03-23 15:00:18

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