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Patients Bullous pemphigoid

Joint Pain

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Huwcymru

22/10/2022 at 10:47

Huwcymru

Last activity on 25/02/2023 at 11:25

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3 comments posted | 3 in the Bullous pemphigoid Forum

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I have been steadily reducing my prednisolone from 30 mg. From 4 to 3 brought on a flare up so back to 4. At present the rash is tolerable, settling mainly on my knees as small grouped blisters. This is accompanied by excruciating knee pain which I use Voltarol, CBD ointment and rarely prescription pain killers.

Anyone else experiencing this?

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LizziB

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24/10/2022 at 00:55

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LizziB

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Last activity on 02/04/2024 at 00:46

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280 comments posted | 6 in the Bullous pemphigoid Forum

19 of their responses were helpful to members

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Hi @Huwcymru

Thanks for sharing, I am sorry your prednisolone reduction hasn't worked out. Let me tag a few of our other members who might be able to share their experiences having BP with you. Maybe they had a similar situation.

@Dorfman @Lambad @ATLDeen @jandtbutler @Jazziboi1 @Kazza55 @Anniefahad786 @Suestone @Jayne2951 @yogiburr @camuk1 @Mossy1 @Abee74 @RozHall @grannysyb

Have you tried reducing your steroids prescription? Where are your rashes located? Are you having searing pain in your joints? Are any medications working to reduce this pain?

Let us know how you are managing your symptoms!

Take care,

Lizzi

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Lizzi

Joint Pain https://www.carenity.co.uk/forum/bullous-pemphigoid/living-with-bullous-pemphigoid/joint-pain-4863 2022-10-24 00:55:02

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Huwcymru

25/10/2022 at 17:48

Huwcymru

Last activity on 25/02/2023 at 11:25

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3 comments posted | 3 in the Bullous pemphigoid Forum

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@Lizzi since reducing the steroids from 4mg to 3 , from 30 initially, the joint pain started, I understand it is due to steroids having anti inflammatory properties which your body gets used to. I increased back to 4mg but I’m reluctant to start reducing again.

Joint Pain https://www.carenity.co.uk/forum/bullous-pemphigoid/living-with-bullous-pemphigoid/joint-pain-4863 2022-10-25 17:48:58

LizziB

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25/10/2022 at 23:33

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LizziB

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Last activity on 02/04/2024 at 00:46

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280 comments posted | 6 in the Bullous pemphigoid Forum

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@Huwcymru Ah yes, I guess you're right, the body gets used to a certain level and adjusts. Maybe your right to be a bit reluctant...

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Lizzi

Joint Pain https://www.carenity.co.uk/forum/bullous-pemphigoid/living-with-bullous-pemphigoid/joint-pain-4863 2022-10-25 23:33:40

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Huwcymru

14/12/2022 at 08:37

Huwcymru

Last activity on 25/02/2023 at 11:25

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3 comments posted | 3 in the Bullous pemphigoid Forum

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My joint pain is now diagnosed as osteoporosis arthritis, which is probably age related.

Joint Pain https://www.carenity.co.uk/forum/bullous-pemphigoid/living-with-bullous-pemphigoid/joint-pain-4863 2022-12-14 08:37:12

Unregistered member

15/01/2023 at 18:55

Knee and elbow pain. It doesnt feel like joint pain though. Its like doughy tender skin pain. Taking any ressure iff can help even if its just clothes

Joint Pain https://www.carenity.co.uk/forum/bullous-pemphigoid/living-with-bullous-pemphigoid/joint-pain-4863 2023-01-15 18:55:27

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