Fentanyl (fentanyl): Reviews and patient testimonials

I was put on fentanyl patches after being on morphine patches for some time. I started on very low amounts but within a couple of years was up to 125mcgms per hour. I was then referred to a Pain Management Consultant who told me that there was nothing he could do as the amount of fentanyl I was on was the equivalent of 500mg of morphine. The fentanyl also left me in a permanent state of brain fog and, according to my family, my personality had disappeared. I spent the next two and a half years working with the consultant to come off fentanyl, going through horrendous withdrawals every three months that lasted for up to two weeks at a time. The reason for coming down every three months was to give my body and my sanity time to recover before the next bout of withdrawal. I am now completely off fentanyl and all other opioids. I suffer from extreme pain but at least I have my personality and my sanity back and I feel that I am a much better person without fentanyl. Please think very carefully before embarking on a journey that may not help you and could be extremely difficult to come back from. 

I changed from the Butrans Patch to the Fentanyl patch,because I thought that it could help me deal with my pain better.But it didn't help me out with my pain. I had terrible headaches, nausea, was so very giddy all the time.So I went back on the Butrans Patch.  I had Fentanyl when I was in hospital, and it did help me while I was in there. But I got no relief whilst I was on the Fentanyl patch at home. 

 Think most of the time it’s all about money. My sister and I both suffer from Bronchiectasis. She has had it chronically, all of her life, mine is a result of pneumonia, just a few years ago ,after a terrible bout of Swine flu. I can fully understand how those poor people that picked up COVID must feel because I felt as though my lungs were liquefying then. It was terrible.

As a result of this, both my sister and I are taking Carbosisteine, Azithromyacine and  Fostair inhalers. She complains constantly about her chemist which changes her brands of medicines for cheaper versions but I argue back that although they’re not the same brands, they must still be the same composition. Both our chemists are Lloyds but our doctors are completely different to one another . Am I right in saying that because I’m fine with what I get but my illness is a milder version of hers.

Once you are given it, don't let them take you off of it. Changed my life, I didn't have a life, each time I put my patch of 75mcg on and it kicked in, I was nearly back to my old self. Although I did get flare ups, not so many, to help me over this I was given oxynorm.   I was able to manage the pain to a very good degree, I had my life back. Then they decided to take me off of the fentanyl, took 8 months, I so wish I hadn't stopped the patches, the pain is so bad, never stops. I've moved so I have new doctors, first they have changed the brand of my oxynorm, which don't work, they don't go for 4 or more hours. Now they are stopping the oxynorm. I'm at my wits end, I must have those pills, they allow me to at least get some things done but what ever l do one day, like cleaning windows, gardening etc the next day l am in agony, I have never had this before. If I just want to lay on the settee, all day then these pills would be ok but I don't, I want to be active, I have so much to do, I get so depressed and fed up and having no one to talk to I suppose doesn't help. So here l am, fighting for my pills