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Are you a carer? Know your rights
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mahai25
mahai25
Last activity on 10/06/2020 at 15:44
Joined in 2015
2 comments posted | 1 in the Procedures and Paperwork group
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I am a carer to my son who has SEN needs he has a care plan for school, but is still not diagnose and I will like to know how is the best way to have it done as I will like to know how best to support his needs as I feel anxious when he is having a moment.
Michael_B
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Michael_B
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Last activity on 25/08/2020 at 17:48
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204 comments posted | 7 in the Procedures and Paperwork group
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Hello @magaidhn and @mahai25 ,
Thank you for posting here. I'm commenting to keep the thread at the top of the list in hopes of attracting other members' attention. Does anyone have any advice for magaidhn and mahai25's situations?
Thanks members!
Michael
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Michael_B, Community Manager, Carenity UK
Jontt44
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Jontt44
Last activity on 16/04/2021 at 11:08
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53 comments posted | 1 in the Procedures and Paperwork group
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Terencjtt
Sundaze18
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Sundaze18
Last activity on 20/10/2024 at 18:37
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27 comments posted | 2 in the Procedures and Paperwork group
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I have a 43 year old son with a severe learning disability and autism. Whilst I do believe that every individual has their own particular needs if I could offer one piece of advice it would be to never give up the fight and push statutory authorities for whatever you feel you are entitled to. My wife and I decided very early that by the time our son was 30 he would be living as independently as possible. For the last 10/11 years he has lived in a rented housing Trust property with support staff who we employ rather than agencies. The package is financed by a Personalised Budget. Just to repeat push, push, battle, battle and then some more.
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JosephineO
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JosephineO
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If you care for someone, you can have an assessment to see what might help make your life easier. This is called a carer's assessment.
It might recommend things like:
someone to take over caring so you can take a break
gym membership and exercise classes to relieve stress
help with taxi fares if you don't drive
help with gardening and housework
training how to lift safely
putting you in touch with local support groups so you have people to talk to
advice about benefits for carers
A carer's assessment is free and anyone over 18 can ask for one.
It's separate from the needs assessment the person you care for might have, but you can ask to have them both done at the same time.
How to get a carer's assessment
Contact adult social services at your local council and ask for a carer's assessment.
If you're a parent carer or a child, contact the children with disabilities department.
You can call or do it online.
How to tell if you're a carer
You're a carer if you're looking after someone regularly because they're ill, elderly or disabled – including family members.
Carers help with:
washing, dressing or taking medicines
getting out and about and travelling to doctors' appointments
shopping, cleaning and laundry
paying bills and organising finances
They can also give emotional support by:
sitting with someone to keep them company
watching over someone if they can't be left alone
All of these count as being a carer.
What happens in the carer's assessment
Someone from the council, or an organisation the council works with, will ask how you're coping with caring.
This includes how it affects your physical and mental health, work, free time and relationships.
The assessment is usually face to face. Some councils can do it over the phone or online.
Assessments usually last at least an hour.
How to prepare for your carer's assessment
You'll need:
your NHS number (if you have one)
your GP's name, address and phone number
contact details of anyone who's coming to the assessment with you
the name, address, date of birth and NHS number of the person you care for (if you have it)
your email address
Give as much detail as you can about the impact caring for someone is having on your life. This willl help make sure you get all the help and support you need.
Which? Elderly Care has a checklist of questions to help you prepare for a carer's assessment, regardless of your age.
Have someone with you
It can help if you have someone with you during the assessment. This could be the person you care for, a friend or relative.
You could also use an advocate. Advocates are people who speak up on your behalf.
They can help you fill in forms and sit with you in meetings and assessments. They're often free.
Find an advocate in your area
If you want to talk to someone about carer's assessments, call:
your local council's adult social services department
Carers Direct's free helpline on 0300 123 1053
Age UK's free helpline on 0800 055 6112
Independent Age's free helpline on 0800 319 6789
Contact a Family's free helpline on 0808 808 3555
Getting the results
You'll usually get the results of the assessment within a week.
If you qualify for help from the council, they'll write a care and support plan with you that sets out how they can help.
Help with costs
Your council might be able to help with the costs. You might need a financial assessment (means test) first. This will be arranged for you after the carer’s assessment.
You might also qualify for benefits for carers that can help with costs.
If you don't qualify for help from your council
If you're told you don't qualify for help and support, your council should give you free advice about where you can get help in your community. Ask if this doesn't happen.
How to complain about a carer's assessment
If you disagree with the results of your carer's assessment or how it was done, you can complain.
First complain to your local council. Your council should have a formal complaints procedure on its website. You should also be told about how to complain at your assessment.
If you're not happy with the way the council handles your complaint, you can take it to the local government and social care ombudsman. An ombudsman is an independent person who's been appointed to look into complaints about organisations.
NHS