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How others look at me
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Neil1964
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Neil1964
Last activity on 07/12/2023 at 21:33
Joined in 2018
85 comments posted | 14 in the Living with psoriasis group
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thats good for you to destress before your big day happens it is stressful enough, you dont need anymore stress . do whatever helps you to destress before your wedding day , everyone is different so have different ways of destressing , but i hope for you your big day goes very well , enjoy . Neil
upanddown
upanddown
Last activity on 18/01/2024 at 19:36
Joined in 2016
17 comments posted | 13 in the Living with psoriasis group
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@Neil1964
Thanks Neil,
I'm feeling a little better now. I was in a bad place when I made the comment, but the mediation and yoga does seem to help a little.
Neil1964
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Neil1964
Last activity on 07/12/2023 at 21:33
Joined in 2018
85 comments posted | 14 in the Living with psoriasis group
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i have reflexology n massage every 2 weeks as this is all i can afford , but it helps relieve all my aches n pains , and i can do what i like for 3days then back to normal pains , just look forward to those 3 days of pain free living , makes me feel normal . i dont take regular meds because of side effects ,the meds i need stop me from driving n going loo . i would go insane if i had to stop driving and my bowels are not very good IBS n chronic pain . so when i am down n depressed i go fishing to relax me .
LittleWoman
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LittleWoman
Last activity on 26/02/2024 at 13:08
Joined in 2018
14 comments posted | 13 in the Living with psoriasis group
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Sometimes what hurts are the stares of little children because they have no filter you know exactly what they're thinking. One told me I looked like a dinosaur! I have to laugh a little at that. Anyone else have to explain that it's not contagious all the time?
upanddown
upanddown
Last activity on 18/01/2024 at 19:36
Joined in 2016
17 comments posted | 13 in the Living with psoriasis group
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@LittleWoman I just saw this commend it did give me a chuckle. I tell them simply that I have psoriasis, but it's not contagious and they can't catch anything from me. Usually, people are understanding.
happypanda
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happypanda
Last activity on 14/02/2024 at 13:05
Joined in 2016
22 comments posted | 12 in the Living with psoriasis group
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@LittleWoman This is so true! Out of the mouth of babes, as they say, no?
Has anyone's psoriasis gotten worse through all that's going on? Mine has a bit from the stress. When I go to the shops I feel the need even more to cover up and hide my plaques so people don't think I have the virus. It's getting more difficult as the nice weather is coming in. Has anyone else felt like this?
TheBoss
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TheBoss
Last activity on 10/03/2023 at 08:16
Joined in 2017
29 comments posted | 14 in the Living with psoriasis group
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I have nail psoriasis so people can't see it from far away, but I get a lot of horrified looks up close. Cashiers sometimes don't want to take money from me at the shops because they think they're going to catch it from me. I manage to hide it in winter by wearing gloves but in the warm months its hard because you just want to wear sandals and people don't want to look at that.
@happypanda I'm having a rough flare right now but I hadn't put it together with the epidemic. Silly of me, it's obvious/
3three3
3three3
Last activity on 26/02/2024 at 13:09
Joined in 2016
10 comments posted | 10 in the Living with psoriasis group
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@TheBoss Oof I understand this. I have it on my scalp and like you in winter I can cover it up with a scarf, but in summer it's just too damn hot. And sometimes even with a hat you can still see it near my ears at at the top of my neck.
At lot of times it's not the words that hurt, because people have the sense to not say anything, but it's the stares that hurt. Instead of just asking, people assume and look at you like you're something on the bottom of their shoes.
nothingelse
nothingelse
Last activity on 26/02/2024 at 13:08
Joined in 2017
12 comments posted | 11 in the Living with psoriasis group
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@happypanda I definitely had more flares from the stress of it all. I felt more self-conscious going out too with it like you said. I think at one point a rash was mentioned as one of the COVID symptoms so I took extra care to cover up so that no one would think that of me.
Courtney_J
Community managerGood advisor
Courtney_J
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Last activity on 13/10/2022 at 16:47
Joined in 2020
1,280 comments posted | 17 in the Living with psoriasis group
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Hello everyone, how are you today? Thank you for participating in this discussion!
How are you coping with how others see you? Have you noticed a change with the pandemic and the lockdown? Has the lockdown helped you come to terms with your condition? Feel free to share here!
@marian @Happychick46 @Clarity @HelenaCreaby @Janeywom @Tamara26 @Jillyb @Salsa79 @Amberl481 @Alan.byrne @Leannek22 @killoranm @Chillsy @Nicole79 @Hannfoley @MeganH
Take care,
Courtney
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Courtney_J, Community Manager, Carenity UK
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Gilda
Community managerGood advisor
Gilda
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Last activity on 03/02/2023 at 15:26
Joined in 2015
710 comments posted | 32 in the Living with psoriasis group
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When psoriasis is visible, the way others look at you can be a real problem that can lead to feelings of shame, social withdrawal and even depression. What are the psychosocial consequences of your psoriasis?
Thank you in advance for sharing! :)
All the best,
Gilda