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MS relapse and optic neuritis
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Courtney_J
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Courtney_J
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Last activity on 13/10/2022 at 16:47
Joined in 2020
1,280 comments posted | 58 in the Living with multiple sclerosis group
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Hello Jerry, thank you for opening this discussion. Let me tag some other members who can perhaps share with you.
Good morning everyone, how are you doing on this Tuesday morning? Have you ever experienced optic neuritis (inflammation of the optic nerve that can cause blurred vision up to complete loss of sight) as part of an MS relapse? If so, how long did it last? Were you prescribed anything for it, such as a steroid or other treatment?
@sirtaki @Katniss @Tinaaholmes33 @Scottydog @Cazbarr57 @JackieTurner @AdeleCB @Sqeakie11 @MarkClayt @Loobyloo @Leesa71 @ednalittle @nowimhere39 @MSfamily @Blackjack63 @annconway75 @Ashleen @Aj2406
Feel free to share any advice or experiences here!
Take care,
Courtney
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Courtney_J, Community Manager, Carenity UK
jerry coleman
jerry coleman
Last activity on 13/08/2024 at 18:01
Joined in 2014
4 comments posted | 4 in the Living with multiple sclerosis group
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Anyone have any experience with weakness in leg , having that now as well , how long did it last for and does it go back to the way it was ie full strength afterwards, any info appreciated
Thanks
Jerry
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Jerry coleman
MSMaven
MSMaven
Last activity on 10/04/2023 at 18:57
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13 comments posted | 11 in the Living with multiple sclerosis group
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@jerry coleman I have neuritis too with my relapses every couple of years, it's awful, isn't it? Thank goodness it's usually only in one eye, but it's painful and it messes up colours and causes blind spots. Very irritating. For me they usually go away after a few weeks when the relapse calms down.
I have overall muscle weakness, my neurologist had me see a physiotherapist to work on some exercises I can do at home to strengthen them. I try to stay active as well to help.
Julie52
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Julie52
Last activity on 02/03/2023 at 06:19
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12 comments posted | 4 in the Living with multiple sclerosis group
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Hi I have permanent Optic Neuritis. I used to have it on and off for quite a few years when I was in relapsing remitting. But now unfortunately for me it’s permanent now because I’m Secondary Progressive. Have to have my eyes tested every 12 months and every year sadly my eyesight is getting worse. 🥲❤️ Love to you all
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Julie Owen
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Hi, After 19 years with MS Im currently experiencing my first dose of ON complete with the joys of first-time- steroids.
My concerns are around my job being glued to a computer screen for 7.5 - 8 hours a day and how long I should be off work before I should go back. Last week when it was diagnosed I was on annual leave and when I spoke to neurologist on friday she said ' at least another week off' but thats pretty vague. I know I cant work at that intensity right now but when the discomfort starts to pale and the distortion caused by one eye starts to ease is that long enough to return to work OR should I wait until my eyesight is reliably 'normal'. I dont want to jeopardy any chance of a full recovery by going back to work to soon.
Anyone been in this position and can advise???
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jerry coleman
jerry coleman
Last activity on 13/08/2024 at 18:01
Joined in 2014
4 comments posted | 4 in the Living with multiple sclerosis group
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Having an optic neuritis relapse in my right eye, pissed off to say the least, had one 9 years ago cant recall how long it took to come back to normal
Any info appreciated
Jerry