Can you have MS with a normal lumbar puncture?

48 views
4 times supported
4 comments

Bern50

29/04/2020 at 07:51

Bern50

Last activity on 03/03/2021 at 10:51

Joined in 2020

2 comments posted | 2 in the Living with multiple sclerosis group

Rewards

Explorer

View profileView Add a friendAdd Write

I was diagnosed several months ago through symptoms I have bern having for over 2 years and the result of my MRI. My neurologist decided after diagnosis to send me for a lumber puncture as he stated the MS clinic would want it done.

He rang me today to say lumber puncture was clear and although he thinks it is defenetly MS the MS clinic may oppose his diagnosis. I am left very confused and upset. I have had symptoms for over 2 years and my diagnosis came as a kind of a relief if that make sense. On neurologists advice I have informed work, DVLA told my family etc now I feel like a hypochondriac. My neurologist give me my diagnosis in writing. Has anyone else experienced this or had an MS diagnosis with a clear lumber puncture.

All comments

Courtney_J

Community manager

30/04/2020 at 15:51

Good advisor

Courtney_J

Community manager

Last activity on 13/10/2022 at 16:47

Joined in 2020

1,280 comments posted | 58 in the Living with multiple sclerosis group

10 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Messenger
Committed
Explorer
Evaluator

View profileView Add a friendAdd Write

@Bern50 Hello Bern50, thank you for starting this discussion. I'm sorry you're feeling upset, receiving a new and possibly unclear diagnosis can be hard to process. Let me tag some member who may be able to share their experience with you and provide a little clarity.

Hello member, I hope you don't mind that I've tagged you. Have any of you had an experience similar to Bern50's? Have you heard of a positive diagnosis for MS with a normal lumbar puncture? Can you share any insights with us?

@Emma1024@Zombieapplebaby‍ @shunt999‍ @Tilly68‍ @Meggie333‍ @182614‍ @Diva360‍ @Charlie12345‍ @Harps10‍ @Fl33tw00d‍ @Jemgavlaa‍ @thembrough‍ @EmilieH‍ @Kareema‍ @Claire1974‍ @Cherylmoore‍ @Carol50‍

Take care,

Courtney

See the signature

Courtney_J, Community Manager, Carenity UK

Can you have MS with a normal lumbar puncture? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/lumber-puncture-3269 2020-04-30 15:51:52

Greeny

04/05/2020 at 14:58

Greeny

Last activity on 02/11/2023 at 23:28

Joined in 2020

4 comments posted | 4 in the Living with multiple sclerosis group

Rewards

Committed
Explorer

View profileView Add a friendAdd Write

@Bern50 I too was diagnosed(2years ago) with a negative lumbar puncture.

I'd had symptoms for several years and lesions on brain scan.I questioned as to was it definitely MS due to the scan results and was told yes it was.

Hope this helps.Take care.

Can you have MS with a normal lumbar puncture? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/lumber-puncture-3269 2020-05-04 14:58:28

Bern50

04/05/2020 at 15:08

Bern50

Last activity on 03/03/2021 at 10:51

Joined in 2020

2 comments posted | 2 in the Living with multiple sclerosis group

Rewards

Explorer

View profileView Add a friendAdd Write

Thank you for replay. My neurologist is saying defo MS but the MS clinic may query it as lumbar puncture clear and because I'm 50.

Can you have MS with a normal lumbar puncture? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/lumber-puncture-3269 2020-05-04 15:08:42

Greeny

05/05/2020 at 09:36

Greeny

Last activity on 02/11/2023 at 23:28

Joined in 2020

4 comments posted | 4 in the Living with multiple sclerosis group

Rewards

Committed
Explorer

View profileView Add a friendAdd Write

@Bern50 I'm nearly 50 as well.Im lucky enough that my hospital has a specialist Ms centre of excellence.

Not all cases have positive lumbar puncture results.keep on asking questions until you get the answers you need.Use your GP as well as hospital staff.It took me a while with lots of tests to rule out anything else but in the end I got the answers..albeit not the happiest of one's.

Take care

Can you have MS with a normal lumbar puncture? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/lumber-puncture-3269 2020-05-05 09:36:14

Can you have MS with a normal lumbar puncture?

All comments

Give your opinion

What do you think about the Carenity Forum and community?

What are your expectations from Carenity and what would you like to see in the future?

Articles to discover...