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- Do you have a carer? Do you find it helpful?
Do you have a carer? Do you find it helpful?
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JosephineO
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JosephineO
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Last activity on 15/07/2024 at 09:21
Joined in 2018
989 comments posted | 44 in the Living with multiple sclerosis group
6 of their responses were helpful to members
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What about you?
@bethen @Barrie @Louise35 @1eyedjack @Bailey123 @Bagpuss66 @Stokey @Clarket55 @Kenbon123 @trish444 @Sk8rGirl @Shaz1968 @Laurab123 @Ecky61 @Felix7 @Bilbobags @Wuddy66 @Monty124 @Swipermonkee @jenny47 @Emskij @Lynn49 @Sasha11 @Jacquiefripp @Tracyfuss @BShields @Blueribbon68 @Jojo21 @ThePinkLady @Moreland @Fobelets @stevebriggs @Audreyib
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Josephine, Community Manager
Laurab123
Laurab123
Last activity on 15/01/2022 at 11:35
Joined in 2018
1 comment posted | 1 in the Living with multiple sclerosis group
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Hi. I don't have a carer as such, but my husband does a lot. He cooks the meals and does jobs around the house that I can't do. I dont need help with washing/showering or dressing. I had to take ill health retirement in November 2017. It's lovely not being tied to an alarm clock but I do miss the social interaction.
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Lcl
Felix7
Felix7
Last activity on 13/11/2021 at 10:01
Joined in 2014
4 comments posted | 4 in the Living with multiple sclerosis group
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I don't have a carer and I still work nearly 30 hours a week.
Bilbobags
Bilbobags
Last activity on 24/06/2021 at 09:09
Joined in 2015
5 comments posted | 2 in the Living with multiple sclerosis group
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@JosephineO I don’t have a carer. Still seem able to cope. I don’t cook per se just live on microwaveable/oven meals (ones where I can just leave them for time required, where I don’t need to be there to ensure all ok). I’m ok with that. Relatively active too, have gym/swim session once a week, physio fortnightly, and I can still cycle (which I love, just got an e bike pack for my Brompton, which enables me travel further and easier with the electrical assist!!). All fun
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bubblyjubbly
bubblyjubbly
Last activity on 10/01/2021 at 13:52
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1 comment posted | 1 in the Living with multiple sclerosis group
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I have carers in 3x daily AM get me up 1.5 hours, lunch call 30 minutes, and bed call again 30 minutes.
weefeemcdee
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weefeemcdee
Last activity on 27/06/2021 at 06:12
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17 comments posted | 5 in the Living with multiple sclerosis group
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I don't have a carer, although my husband does alot for me. He cooks, drives me places, reminds of things I need to do.
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Fi x
JosephineO
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JosephineO
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Last activity on 15/07/2024 at 09:21
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989 comments posted | 44 in the Living with multiple sclerosis group
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@Bilbobags @bubblyjubbly @weefeemcdee @Felix7 @Laurab123 Thank you all for sharing :)
@bubblyjubbly do you have a good relationship with your carers?
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Josephine, Community Manager
Susiek
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Susiek
Last activity on 10/02/2025 at 08:31
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18 comments posted | 14 in the Living with multiple sclerosis group
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I have 2 carers 4 times a day as I have to get hoisted because I can't weight bear hoping to use my sliding board soon we get on really well and have a lot of laughter you have to when you need them
Sk8rGirl
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Sk8rGirl
Last activity on 02/01/2021 at 22:59
Joined in 2019
15 comments posted | 5 in the Living with multiple sclerosis group
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@Susiek what is a sliding board? I am barely transferring to scooter to get to bathroom. That sound fun. I’d like to try. I have a caregiver 4 hrs a week for showers and light housekeeping. If I want to keep my med insurance, I don’t qualify for more help and I can’t afford self pay. Ugh
Susiek
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Susiek
Last activity on 10/02/2025 at 08:31
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18 comments posted | 14 in the Living with multiple sclerosis group
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A sliding board is made of wood and shaped like a banana I need help to put it under my hips then I can slide from my wheelchair to bed and back again I am waiting to be checked using it at home although I was using it in hospital it makes you feel a bit more in control!! ❤️
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JosephineO
Community managerGood advisor
JosephineO
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Last activity on 15/07/2024 at 09:21
Joined in 2018
989 comments posted | 44 in the Living with multiple sclerosis group
6 of their responses were helpful to members
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Hello everyone,
Just a general question today, do you have a carer? If so, who is it? Has them being your carer changed your relationship?
Please comment below and share :)