How does Crohn's disease affect your mental health? How do you cope?
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Last activity on 30/10/2022 at 11:29
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10 comments posted | 10 in the Living with Crohn's disease group
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Hey everyone, I'm new to this community so hopefully I can get some guidance from anyone who might of been in my situation, please see below a rough idea of my journey so far .
I am 22 years old and in July of 2019 I got diagnosed with chronic chrons disease. I had no symptoms of chrons disease until June. My bowel started moving up to 30 times a day and the pain in my stomach was unbearable. I went to my local gp to get bloods to see what was going on. A week later he referred me to my local hospital as my bloods where very bad to the point the lab throught this was an error.
In the space of three weeks I had lost just under two stone and I was very weak and drained from the whole situation.
I have been deemed allergic to infliximab, humira and stelara. After being allergic to the above and the stress of the whole situation I opted for surgery in November of 2019 and got over two foot of my small bowel removed.
After the surgery things were looking up the bowel habits had slowed I was feeling like I had energy again and I was gaining weight. Six weeks post op I was due a checkup and all of a sudden my bowel habits increased rapidly. I felt something wasn't right. I was experiencing bad pains. I ended up in A&E 7 weeks post opp as they were behind on appointments. I underwent more test and they confirmed the chrons had came back on the surgical site and I've the start of perianal chrons also.
When I went through the surgery my surgeon managed to perform it without me needing a stoma which I was so grateful for as I'm on 22 and I can't work my career with a stoma.
I am now currently receiving entyvio to try put the active chrons into remission but I'm finding it hard to believe this will work for me.
I find it very hard to have a positive outlook on life. I feel like the world is against me. I've had a very tough year with my partner and having a new baby on top of the diagnosis.
I find that when I'm stressed or upset my body looses it's appetite and I stop eating which is obviously bad for chrons disease.
If anyone could give me some advice on how to deal with my stress and chrons it would be greatly appreciated as I've tried counseling and breathing exercises etc but it's just difficult to explain how I feel to a counselor who doesn't understand the effects this hidden disease has on your mental and physical health.