Family health history: Knowing your history can save your life!

My Health issues are as follows ,started many years ago,First Diagnosed with "HYETAS HERNIA,/FOLLOWED BY HEART MURMUR,THEN3YRS AGO HEART VALVE LEAKAGE ,LEG ULCERS ,(DRESSED BY NURSE WEEKLY).

SEVERE BACKPAIN INITIALLY MORPHINE CONTROLLED,BUT NOW CEASED ON SPECIALIST NOTICES.THEN IN 2020,THINGS WENT SERIOUSLY WRONG,IN APRIL20 I COLLAPSED AT HOME ,RUSHED INTO HOSPITAL ,NEWPORT,IOW ,THEN TRANSFERRED IN COMA TO SOUTHAMPTON UNIVERSITY NEURO HOSPITAL,THEIR I HAD AN BRAIN OPERATION TO REMOVE BLOOD CLOT,THEN 2ND OPERATION TO REMOVE THE BLOOD AT REAR OF BRAIN,.RETURNED HOME AFER 1 WEEK.LATER TOLD IT WAS A MAJOR STROKE.STARTED TO IMPROVE ,BUT AGAIN IN JULY 2020 COLLAPSED AT HOME,RUSHED INTO HOSPITAL NEWPORT,IOW.THEN HAD CT SCANS/XRAYS AND BLOOD TESTS,RETURNED HOME 2DAYS LATER DIAGNOSED MASS ON LIVER.2 DAYS LATER RUSHED BACK INTO HOSPITAL AND FURTHER CT/XRAY/BLOOD TEST .THEN AFTER 3 DAYS IT WAS BELIEVED CANCER ON LIVER.RETURNED HOME ,AND AUG/SEPT/OCT/DEC20 HAD FURTHER IN/OUT APPOINTMENTS  WITH ENDOSCOPY/COLONOSCOPY/ULTRASOUNDS.NOW SPOKE WITH SPECIALIST AND I HAVE CANCER IN GALLBLADDER,ALSO CANCEROUS TISSUES.SO AM IN THE NEXT WEEKS/MONTHS I AM TO HAVE AN OPERATION OF REMOVAL AND RESEARCH REMOVAL OF CANCER.NOW ALSO I AM TO RETURN FOR BRAIN SCAN AS WITH HEADACHES AND MY EYES ARE CATERACT AND FOCUS PROBLEMS,SO CT SCAN IS TO SEARCH TO FURTHER BRAIN BLEED.SO NOW WAITING FOR FURTHER TREATMENT .SO THATS WHERE I AM AT THIS PRESENT TIME ,AND OF COURSE OF COVID-19 CARONA VIRUS WITHIN UK 

SINCE LAST STATEMENT THINGS HAS BECOME WORSE,.YES SINCE THE 30/01/21 MY CONDITION IS WORSE.

IN THE PAST WEEK I HAVE BEEN BACK TO MY SPECIALIST ,AND ALSO HAVE HAD A FURTHER ULTRASOUND,ALSO FOLLOWING DAY I HAD URGENT APPOINTMENT FOR PRE-OP ASSESMENT/BLOOD TEST.AS SPECIALIST HAS FOUND A GREAT DEAL FLUID AROUND MY BODY AND BELIEVE ITS CANCEROUS,AND IS AFFECTING MY HEART,AS HAVE A HEART MURMUR ,WHICH THE SPECIALIST IS VERY LOUD TO HEAR SO YES HEART IS AFFECTED.SO WILL BE IN THE HOSPITAL FOR URGENT OPERATION  TO REMOVE  THE FLUID AND CANCER.

SO THIS THE LATEST INFORMATION UPTO DATE OF 31/08/2021.AND NOW TO AWAIT OPERATION TO FOLLOW.

UPTO DATE.M COX

@mikey4849‍ 

So sorry to hear that. I do hope that the specialist gives you urgent attention and makes the problem easier for you

Have you had a date for the operation yet? Good luck, and may God be with you

At this moment   in time ,i now have a severe infection in my right leg and so now on 6days antibiotics as during previous night  i had an horrendous night ,when i went into a state of hypothermia and then a state of shivering/shaking and then overheated ,all in space of 3 hrs during the night.If it was caused by infection or believe other problems that caused it.

But was bad and unexplained 

On the 05/10/21 i have a cardiogram/plus scanning around the heart.,

But the operation date is yet to be confirmed .

But with the infections and fluid build up is continuing and is affection heart .

So operation date ,is still yet to be confirmed..

@mikey4849‍ 

It is important for your infection to subside before the surgery, So wait patiently for the infection to subside. At least you have got the cardiogram and the scanning arranged, so there is some movements. Wish you good luck.

Thankyou for your advice i  know the infection must be taken care of before surgery.

But i wont stop the leg bleeding 24/7 as it is continue to do so as i am adding pads

around my ankle where the blood is being contained.

But problem so is as the blood build up its causing a severe bruising on the ankle which

may cause to break open so infection maybe reduced but continued bleeding goes on. and continues to 

cause problems and a danger of ankle breaking open.

Yes have cardiogram plus scanning on the heart  in couple weeks but meanwhile the fluid build up continues daily which is adding pressure on the heart .So hope things will be done as soon as possible as hope the heart does not give out under pressure its a matter of wait and see. again thanks  Mike 

You are treading on dangerous ground here. You need daily sterile dressings with pressure bandage done either in the OPD or a District nurse coming home to do it. You can not continue to bleed like this and increase the risk of infection worsening. Apart from that you are loosing so much blood and that is very dangerous. Please get urgent attention. It is not a matter of weight and see, you can not afford to wait. I am a qualified nurse, please trust me. Hope you get yourself sorted urgently. Good luck.

I recently had an operation to remove an ovarian cyst on my right ovary.

I'm almost back to being able to move without pain.

I had my operation on the 04/02/22.

I'd had to stay hospital longer than what the surgeon thought I would as the surgeon thought that I would only be overnight at least after my operation, but my temperature was raised whilst I was in recovery, which meant I had an infection, so I had to stay in hospital until the 06/02/22 so that I could be given IV antibiotics.

I was given antibiotics in tablet form on the day I was discharged from the hospital.

I was also given pain relief and some more of my antidepressants as the nurse who was looking after me had noticed that I was running low on my antidepressants.

Hello all,

How are you today? Have you had a chance to see some of our general discussions like this one? 😊

What about you? Are you more or less aware of your family health history? Is anyone in your family affected by the same condition or conditions as you? Has it affected your health journey - your diagnosis, treatment decisions, etc. -at all?

@Michelle1 @Ctilley-purser @Suestone @Ajkirsfelds @CardinalsCall @Kendo70 @Fiveleft5 @Aurelie @Thingy

Feel free to share with us here! 😀

Take care,

Courtney