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March 6th - 12th: Endometriosis Awareness Week
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nikki77
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nikki77
Last activity on 13/12/2024 at 07:57
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32 comments posted | 7 in the Endometriosis Forum
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I was diagnosed with endometriosis a few years back well around 9 years ago the doctors didn't know that much about it back then they just kept saying I'm having painful periods? And just keep giving me mefenamic acid tablets they do take the edge of the pains but no amount of medication takes the pain away, the pains get so bad I'm often on the bathroom floor in agony, the pain is worst than labor pains! I've never experienced pain like it and espcespeci when it first happened to me I didn't know what was happening to me.
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nicola kennedy
StarBrite83
StarBrite83
Last activity on 30/07/2015 at 21:42
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1 comment posted | 1 in the Endometriosis Forum
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I was diagnosed with endo in oct 17', had been having pains on and off for years, had an ovarian cyst that turned into a tumor. Thats the only reason I found out I had endo as they removed the tumor they found I had kissing ovaries and everything was stuck to my uterus, had my fallopean tube removed as it had fused, was told I may have to have part of my bladder removed and wear one of those bags on my side. I'm 34, I was told they would like to remove my ovaries as the endo is extensive but I'm too young, I was put on monthly injections to put me into menopause, omg it was the worse 2 months of my life, some women take to the injections, some don't.
So I am just returning to normal now having periods again and waiting for the dreaded endo coming back.
The pain was worse than any of the 3 births I have had, I may add, 2 without any pain relief, the last birth I had gas and air, so I know I can handle extreme pain. I was having days of being in agony the only thing I could do was roll around the floor crying, couldn't stand, sit or lay down, the last time it came I was ill for a month, couldn't go to the toilet properly, couldn't stand up properly, it was just pure agony. At least with labour and childbirth you know the pain is going to stop, with endo it just continues, it exhausting and I wouldn't wish it on anybody.
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Margarita_k
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Margarita_k
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This week is European Endometriosis Awareness Week. Endometriosis affects 1 in 10 women in the UK, and the diagnosis takes the average of 7,5 years - that is why Endometriosis UK orgnanises various campaigns this week and throughout the year, in order to raise awareness of this disease and encourage women to learn to recognize the signs of the condition and get tested for it as early as possible.
What is endometriosis?
Endometriosis (pronounced en- doh – mee – tree – oh – sis) is the name given to the condition where cells like the ones in the lining of the womb (uterus) are found elsewhere in the body. Each month these cells react in the same way to those in the womb, building up and then breaking down and bleeding. Unlike the cells in the womb that leave the body as a period, this blood has no way to escape.
It is a chronic and debilitating condition that can have a significant impact on a woman’s life in a number of ways.
What are the symptoms?
The endometriosis symptoms can vary in intensity from one woman to another, and the amount of endometriosis does not always correspond to the amount of pain and discomfort experienced. Some women with endometriosis experience symptoms while others do not.
The classic endometriosis symptoms include:
- Painful, heavy, or irregular periods
- Pain during or after sex
- Infertility
- Painful bowel movements
- Fatigue
- Symptoms of irritable bowel
- Pain when passing urine
All of the symptoms above may have other causes and may not necessarily be endometriosis symptoms. It is important to seek medical advice to clarify the cause of any symptoms. If symptoms change after diagnosis it is important to discuss these changes with your doctor. It is easy to relate all problems to endometriosis, but it may not always be the reason.
The diagnosis
Getting diagnosed with endometriosis may take some time. The symptoms of endometriosis are very similar to other common conditions. It's important to share as much information with your doctor as possible.
The only definitive way to diagnose endometriosis is by a laparoscopy - an operation in which a camera (a laparoscope) is inserted into the pelvis via a small cut near the navel. The surgeon uses the camera to see the pelvic organs and look for any signs of endometriosis. If endometriosis is diagnosed, the endometriosis may be treated or removed for further examination during the laparoscopy.
Scans, blood tests and internal examinations are not a conclusive way to diagnose endometriosis and a normal scan, blood test and internal examination does not mean that you do not have endometriosis.
Because endometriosis manifests itself in a variety of ways and shares symptoms with other conditions, diagnosis can be difficult and often delayed. Recent research shows that there is now an average of 7.5 years between women first seeing a doctor about their symptoms and receiving a firm diagnosis.
There are many ways you can get involved in raising awareness of endometriosis this week and all year round. Find out more on https://www.endometriosis-uk.org/endometriosis-awareness-week-2017.