Patients Endometriosis

Did your doctor take your endometriosis pains seriously?

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Lulubeans

22/06/2020 at 14:53

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Lulubeans

Last activity on 08/12/2021 at 16:13

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Hello all, I've just joined the site and I'm interesting in hearing about others' experience with their doctors.. I went through several doctors before I finally found a specialist who listened to me and diagnosed my endo. From the beginning my usual gynaecologist seemed to think I was exaggerating or making it up and kept telling me that I should just follow a diet and exercise more to make my pain stop.

From talking with a few friends who also have endo it seems like this isn't an uncommon experience... Did any of you also have a hard time convincing your doctor that something was wrong?

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Mina145

22/06/2020 at 15:19

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Mina145

Last activity on 27/03/2024 at 10:48

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18 comments posted | 12 in the Endometriosis Forum

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@Lulubeans I took a long time for me to get a diagnosis as well. My gyno originally thought I had a hormonal imbalance or just a bad period but after several visits and my breaking down in tears in her office trying to describe the pain, she finally referred me to a specialist. I had some trouble getting some people in my family to understand what I was going through as well, they thought I was just being dramatic.

Did your doctor take your endometriosis pains seriously? https://www.carenity.co.uk/forum/endometriosis/living-with-endometriosis/did-your-doctor-take-your-endometriosis-pains-3487 2020-06-22 15:19:33

Courtney_J

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22/06/2020 at 16:26

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Courtney_J

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Last activity on 13/10/2022 at 16:47

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1,280 comments posted | 6 in the Endometriosis Forum

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@Lulubeans @Mina145 Hello Lulubeans and Mina145, thank you both for creating and participating in this discussion. I'm sorry to hear that you don't feel like you were taken seriously by your doctors. Let me tag som other members who can also weigh in on this topic.

Hello members, I hope you don't mind that I've tagged you. How has your experience been with your doctors? Do you feel that your doctor took you seriously? Did he or she really listen to you? Were you misdiagnosed or diagnosed late because of it? Feel free to share here!
@Ice ice baby‍ @CARNAS‍ @Mandyuk82‍ @Kastur87‍ @Sunshine56‍ @Cherryorchid1101‍ @Coco382014‍ @Luckyvibe‍ @chezzles‍ @Cairine2010 ‍ @fionaneli‍ @Maryuk86‍ @lucybundle‍ @sangor10‍ @Bartongilbey‍ @katrinaj87‍

Take care,
Courtney

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Maryuk86

22/06/2020 at 16:56

Maryuk86

Last activity on 29/10/2024 at 18:30

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2 comments posted | 2 in the Endometriosis Forum

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I was going up and down to the doctors/hospital for a number of years before I was taken seriously. They kept telling me that the pain was in my head. I did get a diagnosis eventually when my husband pushed for them to do the laparoscopy.

CJames

10/03/2021 at 11:31

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CJames

Last activity on 10/03/2021 at 11:00

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10 comments posted | 3 in the Endometriosis Forum

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This makes me so sad reading all of this. I just went through a nightmare experience trying to get a diagnosis for my teenage daughter, and to know that this happens what sounds like regularly is both relieving (to know that it wasn't just us) but also so saddening. My daughter had been having pains for a few years and I admit that at the beginning I thought she was exaggerating her normal period cramps (which now in hindsight I feel so awful about not taking her seriously myself as her mother). Finally in the last year it got to the point where she could barely get out of bed, so we looked for help. Our GP was useless and we had to really press the gynaecologist and call several times to convince her to even consider looking at endometriosis.

Lulubeans

08/12/2021 at 17:26

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Lulubeans

Last activity on 08/12/2021 at 16:13

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6 comments posted | 6 in the Endometriosis Forum

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@CJames Yes, unfortunately it seems like it's status quo... I don't know if anything is being done to change things.

Unregistered member

03/02/2023 at 15:53

To everyone who’s commented, including the OP, I am researching this for my dissertation.

Please get in touch if you are interested, or see my newly posted survey in the thread. :)

nikki77

15/04/2024 at 19:31

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Last activity on 20/11/2024 at 15:25

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Not at all my doctor fobbed me off many times I've been fobbed off by many doctors in my surgery I even changed doctors and he told me it was severe period pain

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Did your doctor take your endometriosis pains seriously?

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