Back

Patients Celiac disease

Gluten-free and eating out

58 views
6 times supported
8 comments

JosephineO

Community manager

11/03/2019 at 15:55

Good advisor

JosephineO

Community manager

Last activity on 15/07/2024 at 09:21

Joined in 2018

989 comments posted | 3 in the Celiac disease Forum

6 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Committed
Explorer
Evaluator
Friend

View profileView Add a friendAdd Write

A member, @jacky17‍ ,recently posted this comment, do you have any advice?

"Hello,

My grandson is celiac and has great problems being given food at school lunch with gluten in it. They know he must NOT have gluten but they make mistakes!

Even worse in restaurants, when his parents ask about which foods are gluten free they don't know or give the WRONG answers.

He suffers enough without these people who should know what has gluten in it, giving him severe stomach ache often for days.

HELP PLEASE"

All comments

JosephineO

Community manager

11/03/2019 at 16:07

Good advisor

JosephineO

Community manager

Last activity on 15/07/2024 at 09:21

Joined in 2018

989 comments posted | 3 in the Celiac disease Forum

6 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Committed
Explorer
Evaluator
Friend

View profileView Add a friendAdd Write

Any advice?

@Merlin‍ @Helen1‍ @SophieOsborne‍ @JazzyC‍ @aria88‍ @Tigger.co.uk‍ @Fuzzyhead‍ @baz2015‍ @Brewes‍ @Caramel‍ @GrannyMags‍ @Divasuz‍ @Geometricus‍ @cat1959‍ @Leanneh‍ @joseph‍ @Miranda‍ @AnnieLouise‍ @Woodbren‍ @kaz40uk‍ @faye68‍ @Diablorojo ‍ @GaynorPatt‍ @Lizbet‍ @Gonzo75‍ @Marian D‍ @Mssunny35‍ @Lorkinn‍ @AnxietyGirl‍ @juliepaton81‍ @Mollymor!‍ @Joan McD‍ @blonde‍ @tania3‍ @jimrosiebelle‍ @Greenie3 ‍ @Maria01‍ @ToughCookie‍ @Angelique1972‍ @Doghoose‍ @Ceri-Anne‍ @springfield12‍ @bernie2‍ @antony‍ @marybf‍ @Valentine‍ @lindah‍ @Mags4711‍ @Tonybartlett‍ @LadyJC‍ @Babyblue2‍ @pinkladie‍ @susany‍ @jojo48‍ @Shell1980‍ @JenCurtis26‍

See the signature

Josephine, Community Manager

Gluten-free and eating out https://www.carenity.co.uk/forum/celiac-disease/living-with-celiac-disease/glutenfree-and-eating-out-2763 2019-03-11 16:07:53

JazzyC

Ambassador

11/03/2019 at 17:52

Good advisor

JazzyC

Ambassador

Last activity on 04/05/2024 at 07:55

Joined in 2016

293 comments posted | 4 in the Celiac disease Forum

13 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Messenger
Committed
Explorer
Evaluator

View profileView Add a friendAdd Write

As regards the school take a list of foods he can eat in and make sure that everyone is aware of it especially the dinner ladies. If the school gets the food in from an outside caterer do the same there. I had the same problem with my son, he was allergic to eggs and after my his dad had to give up work to look after me we claimed free school packed lunches and filled in the forms for allergies. After he was given eggs rolls at least once a week for a month we stopped them. I hoped things had improved that was nearly 20 years ago Just keep at them, reminding them every half term.

As for restaurants I will have a think and if I can think of anything will post again.

See the signature

Janet Collins

Gluten-free and eating out https://www.carenity.co.uk/forum/celiac-disease/living-with-celiac-disease/glutenfree-and-eating-out-2763 2019-03-11 17:52:21

JazzyC

Ambassador

17/03/2019 at 08:10

Good advisor

JazzyC

Ambassador

Last activity on 04/05/2024 at 07:55

Joined in 2016

293 comments posted | 4 in the Celiac disease Forum

13 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Messenger
Committed
Explorer
Evaluator

View profileView Add a friendAdd Write

With eating out where I am in Dorset there are a number of places that have gluten free options for adults but when it comes to kids it is I suspect more limited.

The worst one I had my was in what I call a transport cafe and we were having breakfast. My daughter asked them if I could have something instead of toast as I couldn't eat gluten and there idea of a substitute was fried bread.

Another that doesn't bother me because I am only mildlt effected but which makes my cousin ill is cross contamination. The favourite is cooking gluten free stuff in the same oil as gluten laden meals.

There is no easy way round it all you can do is make sure that everyone knows what your child can and can't eat and just keeps asking and being persistent.

Sorry I can't be more help. Just make almost a nuisance of yourself for your child's health

See the signature

Janet Collins

Gluten-free and eating out https://www.carenity.co.uk/forum/celiac-disease/living-with-celiac-disease/glutenfree-and-eating-out-2763 2019-03-17 08:10:53

Tigger.co.uk

18/03/2019 at 13:31

Good advisor

Tigger.co.uk

Last activity on 21/11/2024 at 23:00

Joined in 2016

735 comments posted | 3 in the Celiac disease Forum

40 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Messenger
Committed
Explorer
Evaluator

View profileView Add a friendAdd Write

I live in Skegness and there is not many places that does gluten free food for eating out so I find it very hard especially for special occasions some places do loads for vegetarians and vegans but if you say your a coeliac they treat us the same as them they don't realise that ours is an illness and can make us very ill if we eat the same food as there's .there needs more to be done for us

See the signature

D M A

Gluten-free and eating out https://www.carenity.co.uk/forum/celiac-disease/living-with-celiac-disease/glutenfree-and-eating-out-2763 2019-03-18 13:31:25

JazzyC

Ambassador

19/03/2019 at 11:13

Good advisor

JazzyC

Ambassador

Last activity on 04/05/2024 at 07:55

Joined in 2016

293 comments posted | 4 in the Celiac disease Forum

13 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Messenger
Committed
Explorer
Evaluator

View profileView Add a friendAdd Write

Tigger I couldn't agree more, there is a desperate need for more education within the hospitality industry about gluten free food. Daft as this might seem my cousin who is coeliac and travels all over the world says the best place to eat is China.

See the signature

Janet Collins

Gluten-free and eating out https://www.carenity.co.uk/forum/celiac-disease/living-with-celiac-disease/glutenfree-and-eating-out-2763 2019-03-19 11:13:24

Eddyyy

19/03/2019 at 11:30

Good advisor

Eddyyy

Last activity on 19/10/2021 at 10:44

Joined in 2014

73 comments posted | 1 in the Celiac disease Forum

1 of their responses was helpful to members

Rewards

Good Advisor
Contributor
Messenger
Explorer

View profileView Add a friendAdd Write

@JazzyC @Tigger.co.uk @jacky17‍ My cousin is such a bad coeliac that she even has to use a separate toaster to everyone else in the family!

I think that a lot of people don't take this condition seriously because of the latest "trend" in the last few years for people who aren't coeliac at all to suddenly decide that it is a diet trend.

On the otherhand, at least it creates more of a demand for gluten-free products! Every cloud has a silver lining ;)

See the signature

Eddyyy

Gluten-free and eating out https://www.carenity.co.uk/forum/celiac-disease/living-with-celiac-disease/glutenfree-and-eating-out-2763 2019-03-19 11:30:21

JazzyC

Ambassador

19/03/2019 at 11:37

Good advisor

JazzyC

Ambassador

Last activity on 04/05/2024 at 07:55

Joined in 2016

293 comments posted | 4 in the Celiac disease Forum

13 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Messenger
Committed
Explorer
Evaluator

View profileView Add a friendAdd Write

Eddy my cousin is the same. I am a lot luckier in that my problem is only comparatively mild. I never used to eat out as I had a whole raft of eating issues ( diabetic, nut allergy, diviculatus etc.) but now I refuse to let it stop me, I just make a nuisance of myself if I don't get any sense out of waiters. It is getting a lot better and within 10 miles of me there are 2 restaurants who specialise in gluten free food.

See the signature

Janet Collins

Gluten-free and eating out https://www.carenity.co.uk/forum/celiac-disease/living-with-celiac-disease/glutenfree-and-eating-out-2763 2019-03-19 11:37:21

Tigger.co.uk

14/04/2019 at 16:11

Good advisor

Tigger.co.uk

Last activity on 21/11/2024 at 23:00

Joined in 2016

735 comments posted | 3 in the Celiac disease Forum

40 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Messenger
Committed
Explorer
Evaluator

View profileView Add a friendAdd Write

You are supposed to use separate utensils and toasters because if your food gets near food that is not gluten free then you can become contaminated when I go to restaurants or cafes that serve gluten free or wheat free I always check but if you are a coeliac wheat free or dairy free then I suggest you join Coeliac UK as they have a special book on what you can or cannot eat and places of where to get gluten free food also recipes and places like restaurants etc you join then you receive a coeliac membership card and once a month they send you a magazine with free tickets that you can apply for also they will help with anything you are not sure of and they also have there own charity and places you can fundraise I joined many yrs and I find them very helpful especially if you have children that are also coeliacs I do hope you will find this helpful also they have a website that you also can join lots of love tiggs x

See the signature

D M A

Gluten-free and eating out https://www.carenity.co.uk/forum/celiac-disease/living-with-celiac-disease/glutenfree-and-eating-out-2763 2019-04-14 16:11:21

Members are also commenting on...

Articles to discover...

06/11/2020 | Advice

Coeliac disease and the gluten-free diet

12/02/2019 | Advice

Photo Testimonial: Irritable bowel syndrome prevents people from living

08/02/2019 | Testimonial

Stop industrial foods to fight obesity, diabetes, Lyme disease and depression

12/01/2016 | News

Crohn’s disease, ulcerative colitis tied to anxiety and depression

18/11/2024 | News

Drugs and libido: Which treatments can affect your sexual desire?

16/11/2024 | News

Attachment disorders: How do they affect our interpersonal relationships?

08/11/2024 | Advice

Procrastination: Bad habit or a secret self-care strategy?

04/11/2024 | News

Bloating: Everything there is to know!