Did you have a say in your CD treatment?

@friedegg Hello friedegg, thank you for starting this discussion. I think this can unfortunately be a common experience among patients with chronic illness. Many feel they have no say in their treatment and are only told what to do or take. Let me tag a few members who may have an opinion on this!

Hello everyone, I hope you are doing well!
What has been your experience with your doctors and medical team regarding your treatment? Do you feel that you had a say in your choice of treatment? Did they give you a say in what medicines you should take or treatments you should undergo?
@PennyLane‍ @Jurdie‍ @Caski33‍ @Sashvin‍ @Wellemma‍ @Sarahjane79‍ @LukeIan‍ @RhettB‍ 

Feel free to share your thoughts and experiences here!

Take care,
Courtney

I think in my and my brother's experience, the thing with CD being so rare and the treatments being still relatively experimental and there not being a lot of information out there, we had no choice but to follow the doctors' orders. We weren't and still aren't in a place to be able to really offer an opinion. Surgery wasn't an option in our case and obviously my brother being young, he wanted to absolutely fight the disease. So yes, beyond saying "yes let's do the treatment" we didn't really have a say, I suppose. I obviously can't speak for others, but I think it's not uncommon with rare diseases. Hopefully as time passes and more treatments are developed and approved we'll all be more informed and in a place to have more of a say.