- Home
- Share
- Forum
- Castleman disease Forum
- Living with Castleman disease
- Which type of Castleman disease do you have?
Patients Castleman disease
Which type of Castleman disease do you have?
- 54 views
- 4 times supported
- 4 comments
All comments
friedegg
Good advisor
friedegg
Last activity on 21/10/2022 at 02:54
Joined in 2020
17 comments posted | 15 in the Castleman disease Forum
Rewards
-
Good Advisor
-
Contributor
-
Messenger
-
Explorer
@Courtney_J I have iMCD. I was diagnosed earlier this year. The doctors initially thought it was lymphoma, so I went through all the scans and had a biopsy. The tests came back indicating it was CD. I was found to be anemic, which is apparently common in iMCD.
PennyLane
PennyLane
Last activity on 07/09/2021 at 12:24
Joined in 2020
9 comments posted | 9 in the Castleman disease Forum
Rewards
-
Contributor
-
Explorer
@Courtney_J @friedegg I also have multicentric. I was just diagnosed a few weeks ago. I haven't been feeling well for about a year now and after months of pushing and refusing to accept the various things they tried to diagnose me with, after a biopsy they came back to me with MCD. In general I'd just been feverish and sleeping poorly and had swollen lymph nodes and after a scan they noticed my liver was englarged.
RhettB
Good advisor
RhettB
Last activity on 25/11/2022 at 10:38
Joined in 2020
10 comments posted | 8 in the Castleman disease Forum
Rewards
-
Good Advisor
-
Contributor
-
Explorer
My brother also has iMCD. Interesting that UCD is the most common, but most people on here seem to have iMCD. Maybe it's because the treatment is more complicated? From what I've read in UCD I believe they can treat it by just removing the affected lymph node? Feel free to correct me if I'm wrong, of course.
Courtney_J
Community managerGood advisor
Courtney_J
Community manager
Last activity on 13/10/2022 at 16:47
Joined in 2020
1,280 comments posted | 16 in the Castleman disease Forum
10 of their responses were helpful to members
Rewards
-
Good Advisor
-
Contributor
-
Messenger
-
Committed
-
Explorer
-
Evaluator
Hello everyone,
How are you today? For some of our newer members, have you seen this discussion?
What type of Castleman disease do you or your loved one have? How and when did you find out?
@Lorraineanne @NAGARAJAN @samora @Clair1066 @Qamar786 @ALIRAY
Feel free to share with us and ask any questions you have here!
Take care,
Courtney
See the signature
Courtney_J, Community Manager, Carenity UK
Give your opinion
Members are also commenting on...
Articles to discover...
18/09/2022 | Testimonial
23/08/2022 | Advice
3 tips on how to stay positive despite being affected with Castleman disease!
23/07/2022 | News
08/06/2022 | Testimonial
Testimonial - Castleman disease: "I was relieved to finally find out what I'd been suffering with!".
07/05/2022 | Advice
Castleman disease: tips for improving your daily life with the disease!
30/06/2020 | News
29/04/2021 | Testimonial
Castleman disease: Finding the strength to fight through community
17/06/2021 | Testimonial
Castleman disease: "I want to tell everyone to listen to their body and how they feel!"
Subscribe
You wish to be notified of new comments
Your subscription has been taken into account
Courtney_J
Community managerGood advisor
Courtney_J
Community manager
Last activity on 13/10/2022 at 16:47
Joined in 2020
1,280 comments posted | 16 in the Castleman disease Forum
10 of their responses were helpful to members
Rewards
Good Advisor
Contributor
Messenger
Committed
Explorer
Evaluator
Hello all,
As you know, Castleman Disease groups together at least four disorders impacting the lymph nodes: Unicentric CD (UCD), HHV-8 associated MCD, Idiopathic MCD (iMCD), and POEMS-associated MCD (POEMS-MCD).
UCD is the most common type of Castleman Disease, making up 50% of cases, followed by iMCD and HHV-8 MCD, which account for 25% of cases each.
Which type of CD do you have? How and when did you find out which type you have? Do you experience any symptoms specific to your type of CD? Feel free to share here!
Take care,
Courtney