What is your endometriosis story?

Hi, I had 10 years at least of chronic pain because of endometriosis but wasn't diagnosed until the end of 2012. It took a while to get an official diagnosis, I went through contraceptive pills and NSAIDs that did nothing. It wasn't until I had a really bad flare that lasted more than a month that I was finally diagnosed. I've since changed contraceptives and it has worked a bit for me, but some days the pain and fatigue is just unbearable. 

@Courtney_J @Lulubeans Hi, I've had endometriosis for at least 8 years. I couldn't any doctor really to take me seriously, they just keep insisting that I had normal menstrual cramps. To date my endo has just gotten worse and worse and nothing I have tried has worked. I'm supposed to have an operation to take out a cyst and some scar tissue but I don't really see the point. I'm thinking about getting a total hysterectomy to be done with it. I'm just tired. 😔

Hi, my daughter was recently diagnosed with endometriosis after a few years of dealing with intense pain. Because she's so young they've decided to not do any kind of operation yet and they've put her on a combined pill. It's pretty new to her so for now we're keeping our fingers crossed that it helps.

Hello everyone,

How are you today? 😊

Have you had a chance to check out this ongoing discussion? It could be interesting to hear from some of our new members.

@marhan20 @JackieVR @Emily7798 @Jempin @imanusardi @Pennylein64 @CandiceT @HVID55 @Mina145 @Lulubeans @CJames @Rrgfeeg @nikita_a907 @elderfield80 @topi34 @bendenning @Dayannapr @Mclellan @Zoe0505 @Gina40 @AndreaBR @Sarabox @Spoonie_51 @Traceyaa @esw048 @slousa @Tracy-mack @Louise84 @Mblyth @nikki77 @Mysti75 @rogue_1990 @pmax1972 @Tash76 @Brunette @em2208 @Spottypants @queenie85 @Ice ice baby @CARNES @CARNAS @Sunshine56 @Coco382014 @Luckyvibe @Cairine2010 @fionaneli @Maryuk86 @meme23 @sangor10 @Bartongilbey @TitchK @mcintam @Fibromates @miskatonic_foxy @Natasha11 @charlie83 @archybald1 @twecolynne

What symptoms led to your endometriosis diagnosis? Were there any misdiagnoses? Which treatments have you tried, and how have they impacted your well-being?

Don’t hesitate to share your story with us here!

Take care, 

Somya from the Carenity team 🌼